Kaleb had the MACE done on Monday. The surgery went well and he's healing nicely, today he even made it through the school day. On his paperwork it said that...
WE HAD THE PROCEEDURE DONE IN 03. WE ALWAY HAVEUSED THE SOAP SUD ENEMA BAGS THAT THEY USE IN THE HOSPITAL. I GET THEM FROM THE PLACE WE GET OUR CATHERS...
Heather your post really made my day. My name is Rhonda and my son who is going to be 13 in two weeks has sb. Im having a lot of trouble getting him to do...
I am now starting to work on the "Travel" page of the website. Do any of you have any tips for making travel easier? How to cath on the road? How to get...
Try http://www.dyspraxiafoundation.org.uk/ I found this on Google even with your mis-spelling of dyspraxia .... but, of course, you don't mis-spell things, do...
Today Shannon and me went to see the GI doctor for the first time with our 11 month old son, Charlie. Charlie has been extremely constipated and yet going to...
Brent, if he has very low tone, then the sphincter muscle of the anus is unable to contract properly & thus poop would come out without his being able to hold...
When Anna was born, she had rectal prolapse. She had no tone in her rectum- they told us that we should just think of it as if she didn't have a sphinctor...
rite maybe u do spell wrong mind in all fair ness I can spell dispraxia acually I mean Im the only one who knew my son as it and he's seen good nos who , try...
It means he needs to get on a bowel management program which will be hit and miss for awhile until you find what works to keep bm accidents to a minimum per...
Just curious why one would consult a urologist-bladder/kidney MD for bowel management versus a gastrointestinal specialist or people at spina bifida clinic? ...
Hi Charlie ~ Why see a urologist for a bowel program? I have no idea. The SB clinic my son attended as an infant told me that urology would help develop a...
Our daughter's urologist is the one who first discussed a bowel program with us as well. The GI had no idea what we were talking about when we said, "cone...
thanks for your complete answer Things so much different than when I was growing up in the 1950's and sixties. I was helped in the spina bifida clinic at the...
For some reason we don't have a GI in our clinic. Only a Uro. Anne _____ From: spinabifidacentral@yahoogroups.com [mailto:spinabifidacentral@yahoogroups.com]...
On the travel page I added a downloadable booklet from FEMA/Redcross that is for people with special needs. It takes you through a checklist of things you...
Hello everybody My 8 year old daughter was recently diagnosed with Spina Bifida Occulta while performing an X-ray for frequent abdominal pain. She does not...
Hi, I am not sure if the size thing is related to SB or not. I understand your concern about your daughter being smaller (I have an underweight 19 month old...
We don't have a GI in our clinic, either. My son sees a GI doc separately. That also contributes to my thinking that a large number of urologists (at least...
Get her Thyroid checked There are a number of symptoms that erupt because of issues with the thyroid. If there is no plroblem, then you can eliminate that. B...
Ok, here is the problem. My son Nathan (3 yrs) woke up this morning with this hard bump on his chest, right over his sternum. It's about the size of his little...
Wow, I would definately get a second opinion! ... morning ... about ... So ... place. ... connect. ... doens't ... really ... what ... something ... this ... ...
Hi, So do you think this could be spina bifida related? I don't even know where I would start to get a second opinion. What kind of Dr. would know about...
Does he go to spina bifida clinic? If so, I would call there and ask what they think. They may want to get him in right away or they may be able to alleviate...
I would contact a neurologist. They are usually the ones to see if something is spine related. Christie ... even know where I would start to get a second...
I have that same thing. It looks like (and I'm being a little blunt) another boob. LOL! If it's not hurting him or causing any discomfort or pain I wouldn't...
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