heloo to all here in this group.iam a 37yrs old guy that was born with meninggocele i have a shunt that was put in my head when i was born and they have never...
Thanks so much for the info on the wheelchair I really appreciate it. I have found out there is allot involved in wheelchair use. The ramp, good flooring...
Hi Jerry, My son is 5 and we are in the military as well. While my son is not anagent orange child. He has been denied over and over any kind of SSI or...
Rachelle, What state do you live in? What I have found out about SSI is very confusing and makes me mad. In the state of TN the fact that a child is born...
MY ADVISE IS NOT TO REAPPLY BUT APPEAL THEIR DECISION. EVERY TIME YOU REAPPLY YOULOSETIME. IFYOU APPEAL THEY GO BACK TO THE FIRST DAY YOU APPLIED. THE...
I just wanted to introduce myself to everyone. I am Lisa I have a 14 year old son Tyler who has Spina Bifida. I also have a 12 year old daughter-who thinks she...
Hi Jerry, There should be some kind of help available for you.It should not matter what they feel caused your condition, you should get help based on your...
I totally agree. My son's SSI is based on me not working. I was told if I get a job or generate any income he will lose it. Because he gets child support it...
It is the same here with SSI, I have been home with Devin for 8 years because of it, and our debt just gets higher and higher because of it. But as someone...
I know how you feel. I would love to work, but who is going to be home with him when he is sick? I even applied for food stamps thinking every bit helps. But...
Hi, my name is Carlos. I am a 25 year old male from new york who was born with spina bifida. I joined this group because i want 2 meet more people that were...
I just read part of a post "everyone says or somebody said"... Find out for yourself from local or state social services social worker etc. Also check ssa.gov...
welcome to the group. my name is christy and i have a 12 year old daughter with sb, along with a 15 year old son and a 7 monthold daughter. christy ...
Hi everyone. My name is Rachelle and I'm 21 weeks pregnant with twins. I just found out last week that one of then has SB, they have estimated it at about...
Hi Rachelle, My name is Rachelle too! My son is 5 and has SB. He is the most happy go lucky kid you will ever meet. His name is Kai (like pie) he is a...
Hi my name is Lisa and my Daughters name is Macy and she is 2. She has a L2 level of Spina Bifida. She is doing great and I thank God for her. We are...
Hi Lisa, I am Lisa and have a 2 year old with L2 level Spina Bifida what level of Spina Bifida does Tyler have? Does he have a shunt and does cath. ...
Hi Rachelle! I am new to this group too. I have four children and the youngest (almost two) has spina bifida at level L2-L3-L4-L5-S1. I am sure every parent of...
... l4 l5 ,she also as talipies , club feet, , discolated hip and a shunt was fitted at 2 week old , I would like 2 say if u want 2 email me u can ,,I no it...
can anyone help Wiv advise? Today I ave a appointment wiv renal Drs at spina bifida clinic and I'm fed up Of the way we are treated by Drs ! I'm takin my asbah...
Rachelle, I cannot offer information but wanted you to know I will pray for the health of your babies...2! What a blessing! Kelly R (waiting for my 3.5 yr...
What are the Dr.'s saying? I had to look up what an asbah advisor was...lol...I now know that it's Association for Spina Bifida and Hydrocephalus. Let us know...
yesturday went good but ur was only coze my adviser was there, they were like different people, it all Started when Ashley was born catherter nurse had us usin...
Hi Rachelle: I'm Heather. I'm a 43 yr. old mom who has SB myself. My son Jack is 5 and is not disabled. I just wanted to offer myself as a contact for you....
I would not be very happy to find out that my daughter was in a medical research with out my knowledge...I am pretty dure that is illigal! I am glad your visit...
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