Hello Patrick it's nice to meet you. My name is Ashley Francis. I'm 18 and from Arkansas. I was born with Spina Bifida myelomeningocele at the L 4-5 area....
Patrick, I have the ACE for my bowels. Mine is on the side of my stomach. It isn't hidden in anyway. My mitrofanoff is wear my belly button used to be and it...
Hi, my name is mel I am new to the club and underwent the mitrof surgury two years ago. Mine is hidden in my belly button and execpt for the snake like scare...
... isn't ... and it also ... things have ... the bladder? ... every ... currently ... about ... ashley_frncs ... is ... stoma ... it ... in ... protrude ... ...
... hope that my information did help sorry for the confusion. Take Care Melanie L5,S1 ... the surgery! YEAH! ... surgury ... was ... me as ... do ... the...
Hello Ashley, do hope all is going well, especially with your upcoming college Masters, good luck at that. Patrick ... every ... a ... about ... is ... stoma ...
Thanks for your feedback Summer, some of the procedure may have changed in the last 12 years, I am a long way from a major medical facility for this prodecure...
Thanks Mel, your surgery was 2 years ago, and the opening (stoma) is somewhat hidden in the belly button, perhaps this is the current approach. patrick ... ...
hi, just wanted to introduce myself. well i am a mother of a one year old and 20 weeks along with twins. at my level 2 ultrasound yesturday i was told that one...
Hi. My name is Ashley Francis. I'm 18 and I live in AR. I was born with SB myelomeningocele and my lesion was at the L 4-5 area. I'm paralyzed from the waist...
well I'm new to the group, one of my twins was diagnosed with SB 2 days ago, and as I'm sure you can imagine I've been on an emotional roller coaster since. at...
I understand how you are feeling but know that your life can be normal it may just take extra work. You can email me privatley if you would like or add me to...
Try to relax and take a deep breath..........take one day at a time. Doctors don't know everything. Try to enjoy the rest of your pregnancy. Many of us here...
Hi, i see you are very scared, anything unknown makes us nervous. First congrat's on getting 2 little blessing from above. Your baby with spina bifida is...
HI, I understand how you are feeling..I was there 16 years ago. You will have a normal life and take vacations and be very ok. Every child with SB is...
Hey...take a look at some pictures of my 5 year old little girl... amoore3596@.../ that may help you some. My daughter is cathed 4 times a day due to...
As was already said, first relax, take a breath, and realize that so much of what you feel is normal. And to wish her away is kinda normal too. But ask how...
I agree with what the others have said. Our daughter is 5 and is a great blessing. She wears short plastic braces that come up to her ankles. We turn her socks...
Congragulations on your twins, don't be afraid to cry and be angry you are going through a greiving process the death of a dream the family you had imagined....
our little man has sb we had him since he was 2months.it was us or foster.at times it real trying at times but i would not of done it any diffrently.he is one...
Well being a new adult (I'm 18), I don't know what your going through as a mother, but I'm here to tell you that, yes, she can have a normal life. As normal...
She can defintely have a average life. I don't know what normal is yet. I have SB and I volunteer,go to church,wheel my self around town and act just like...
I am the mother of Alex 2 (SB L3 L4) and wife to Mike. I have reached this second year of my sons life with great joy for all te things he is and for all the...
I think it's a good idea that you have a life of your own. You need time to recharge your batteries and do what you enjoying doing. It will help your son to...
Kelly and I have 5 children, working on adoption of #6. Cassie (5) has microtia of her left ear, Jonny (4) has various health challenges including a cleft...
You aren't selfish...probably your son will love being able to play with the other children. SB can takeover your whole life and I think that can be...
Dear "westerner": Just to reassure you, you have found out about your baby's disability early, and with modern medicine, the doctors will be prepared when your...
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