It has been some time since I have been here to post anything! So, I will refresh memories as to who I am and about my son! My name is Jacqui and I am a mom...
I am new here and I just wanted to say hello ! My Daughter Erin has S.B. She has had a rough life with 40 surgeries in her almost 7 years..I have built a...
Hi! I just wanted to reply because I have at least 40 surgeries by the time I was 7 to. I am a T-12 SB person with hydro/shunt, ACM-II, and a bunch of other...
Hi Jacqui, First of all, I would like to ask if you have looked at tethered cord? That might also be a source for his pain. Second, I developed migraines a...
has anyone ever been told that thier shunt may stop working someday and there will be no way to know when it happens? my neuro said that there may come a day...
Hi Amber, Thanks for responding to my post! Yes, we have thought about tethered cord - Brett has already been through 3 surgeries for that in the past. The...
Hello, All, I was needing some advice from those of you who've been at this longer than I have. My daughter is 4 months old (2 months premature) with SB,...
Hi Tami! My name is Cari i'm 24 years old with sb L4-5. I would recommend getting the shunt if a neurologist says your daughter needs one. There's a lot of...
I'm gonna agree with Carrie, Tammy I think you would be doing the right thing by shunting asap if they say its necessary. I have been blessed I had mine put in...
Yep I have been told that matter of fact I don't think I use my shunt to this day. I have two. one when I was 7 days old and then a new one was place on the...
I've never heard that. What do you mean it stops working? You mean that they won't be able to replace it because it no longer drains fluid or just that it will...
I have had a shunt since I was a couple days old. I haven't been using it since I was a teen. That just means I have no hydrocephalus presently, no build up...
Hi Tami, I would have to say not to do it at this point. Not until there is a presence of a problem, and you'll know it if there is, newborn or older. My...
we wont die lol. relax. my doctor told me that someday, there may come a time that he will find that my shunt stopped working and i may never have symtoms. all...
Tami, There is a difference between enlarged ventricles and hydrocehalous. I notice you said Kansas, and wonder where you do clinic at. We started off at...
okay wow you're a little rude...i dont understand why my concerns are funny. i have known people who have died of shunt malfunctions so i think its perfectly...
... someday and there will be no way to know when it happens? my neuro said that there may come a day that my shunt stops and its possible i wont even know...
Hi, Cheryl, Thanks for writing. I clinic at Children's Mercy. Wednesday was my first one. It wasn't a good experience. I saw Dr. Hornig. Do you know him? ...
i never intended to make fun of you. i guess i will never be accepted by some of the posters here due to my past posts that some of you found distasteful. for...
Ive been told mine hasnt been needed since i was about 10 yrs old and yes ive also laughed when people tell me omg your going to die if you dont have it...
Please do not tell me that someone could not die from a shunt malfunction. I have known a few people who did. I'm sorry to hear that you were diagnosed with...
My daughter is 13 and she is in the 5% that did not need a shunt. Did the new neuro do a MRI? You need to have one done and compare it to the one done at...
I am a parent of a child with SB and I was just wondering what your SB levels were...just wondering what my daughters chances of having children are. My...
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