I am a 30 year old male from Ohio. The name is just a play on words, my buddy couldn't remember the real name of my disability. Sorry, really don't know what...
HAVE YOU TRIED EAR CANDLES? WHEN MY DAUGHTER THINKS SHE IS HAVING SHUNT PROBLEMS THIS IS THE FIRST THING WE TRY. SHE IS 31 AND HAS HAD OVER 20 SHUNTS SO WE...
When my daughter first started cathing, her insurance company refused to pay for them because they did not pay for disposable supplies. I had to write two...
Thank you to all who responded to my message about my daughter. It makes me feel better just to know that we are not alone. I am taling some of your...
Welcome April I am Christine also 36 year old. I walk with braces and crutches but for distance I use a wheelchair. I had the TC surgery at the age of 18. Only...
Any suggestions for a 19 year old young woman with SB who does't care about her appearance or hygiene. My daughter is just not getting the message that she...
Hello, my 14month old daughter has spina bifida L5-S1, chiari II decompressed twice, hydro/vp shunt, tracheostomy, g-tube, central sleep apnea, and a syrinx....
Hi Christine, I am from England, i am in the process of having Botox injections in my leg, my left side being the problem as any one had this done also....
Nancy I have experienced what you are with your shunt. I actually went 18 year with out having a problem and then had problems for a few years after that. When...
I am from Ottawa Ontario Canada. I am 39yrs old. I have Spina Bifida and Hydrocephalus. I am able to walk but I use a walker., mainly because of my balance. I...
Hi, My name is Jaime'. I don't post much but I have a problem and was hopine someone could help. I have been down in the dumps for the past 3 weeks and can't...
HAPPY NEW YEAR EVERYONE! MY DAUGHTER HAS BEEN DEALING WITH A VERY HIGH WHITE COUNT. THE ONCOLOGIST HAS RULED OUT LEUKEMIA BY DOING A BONE MARROW STUDY LOOKING...
Good Morning Everyone,
I've read the posts for the last two days and I feel that even if it causes my fellow members with SB to be upset with me or I come...
HELLO EVERYBODY I HOPE THAT EVERYONE ENJOYED A MERRY CHRISTMAS. I WAS HOPING TO GET SOME ADVICE. I HAVE A DAUGHTER THAT HAS SPINA BIFIDA SHE IS 26 MONTHS OLD....
katherine" has sent you an e-card! You can view the e-card by following the directions in your e-mail program to display the HTML image. If you have any...
there was no ecard attatched that i could see christine ... From: katherine <coffeelover@...> To: spinabifidacentral@yahoogroups.com Sent: Saturday,...
My daughter, Katie's photo is in a contest where we can win $200 worth of scientific toys. We could use your vote. The contest expires on the 15th at 9 pm PST....
Hi, im new to this group so i just wanted to say hello to all the members. Joanie ... Do you Yahoo!? Find out what made the Top Yahoo! Searches of 2003 ...
Hello All. I am a 24 year old male with SB and would like to start a topic about people's experiences on thier personal life with relationships and sex. I am...
I think most of our regular members r very busy to write.Here's letting them know that this particular video is very touching and moving and hopfully it will...
Hi everyone I am new to this group, I am 27 years old and 4 months pregnant My Dr. recently did the AFP/Triple Screen test everything was normal except for the...
Nice story and video.This was posted on my intimacy group and want to share with others groups that deal with disability... This should make you think how...
i'm Natalia. hi....hi Natalia....wow this feels like i'm joining AA. i have sb: myelomeningocele and hydrocephalus...neither of which interfere with my...
i hate to do this ,please refer to a previous post on sb being a disease. it is . not all diseases are communicable, and sb is one of those. medically...
