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spinabifidacentral · Spina Bifida Central -A Place To Find Support And Share Experiences

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Group Information

  • Members: 2340
  • Category: Spina Bifida
  • Founded: Feb 4, 1999
  • Language: English
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Messages 1 - 32 of 10681   Oldest  |  < Older  |  Newer >  |  Newest
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1 oichick621 Apr 19, 2002
10:13 am
I am looking for an image for a cat tattoo, as I can't draw myself, i am looking for someone to draw one for me. This is the vision in my head A sexy, petite,...
2 cristi252 Apr 19, 2002
8:30 pm
Hello! Hows everyone doing? I was wondering where you all went? I can hear myself echoing in here! LOL Actually Im not doing as well as the last time I...
3 bendcoles Apr 20, 2002
12:48 am
Hi Christi. Most people have joined the new SB website because this one wasn't working for so long. Here's the addy: ...
4 teeanna1989 Apr 20, 2002
1:03 am
this sight is finally back up and running great , i hope the ones that didn't change over will still be able to keep in contack with everyone else and hope...
5 chris1h23 Send Email Apr 20, 2002
4:32 pm
Laura I Think both of these clubs your and mine can help each other..These clubs are to help each other, yours more towards the parents with sb and mine more...
6 dotmac_1999 Send Email Apr 20, 2002
5:06 pm
I'm new to this group but no doubt some of you have chatted with me before, on other groups. I stumbled upon this group while surfing the SBHAO home page....
7 lakeshow2062 Apr 21, 2002
4:20 am
Hey,what a surprise,the board is back!It only took yahoo...how long? ;-) Well,I guess better late than never :) Hope everyone is having a great weekend!If long...
8 lakeshow2062 Apr 21, 2002
4:32 am
Hi Dot, I'm sure that anyone that has been here as long as I have,can tell you that you will get a ton of support and information here!It always has been one...
11 wheelzbraced Apr 21, 2002
7:17 pm
I am Brock in MN - a guy with SB, age 22. I walk with braces/crutches and have a wheelchair for standby. Do many of you have to deal with bladder incontinence...
12 sbmomles Apr 22, 2002
3:42 pm
I would like to know if anyone here could tell me how long it could take for my 5 year old to get over bladder augmentation surgery. We plan to have it done...
13 ocmd717 Apr 22, 2002
3:45 pm
I am really happy to see this club up and running again. I posted on this club and the other, but never got any response. Yahoo really had to make the clubs...
14 jazandjosh Apr 22, 2002
11:16 pm
Hi all! I'm not really sure about augmentation yet my daughter is just going through the dilation of the urethal this summer.Her Uro said she will probably...
15 hapman33 Send Email Apr 22, 2002
11:55 pm
Does anyone out there have Edema?...
16 hapman33 Send Email Apr 22, 2002
11:57 pm
Does any one have trouble with Edema?...
17 treetoad3gsb Apr 23, 2002
2:40 am
... at the same time. She was in the hospital for 19 days. Had a few days added ofr an infection. She went back to school I think two weeks after she got...
18 bfit516 Send Email Apr 24, 2002
10:12 pm
We just got a 2nd oninion today on tethered cord surgery. The first neuro said he sees a change in the new MRI and we need surgery. The one today said he...
19 angel292925 Apr 26, 2002
12:59 am
... Hapman33 I've had problems with edema for about a year. They haven't found the source yet. My blood pressure is great and my blood work is normal. The...
20 sbmomles Apr 27, 2002
7:57 pm
You said that your daughter had the bladder aug. surgery done. I have another question. You said she had the malone done. What is that? I have never heard of...
21 proudmom45150 Apr 28, 2002
2:59 am
I would appreciate any information anyone can provide on the use of standing frames in children. My son is 12 months old and orthopedics wants to get him...
22 treetoad3gsb Apr 28, 2002
4:42 am
... the risk of develping fractures later on. It is also good for his developement. At his age kids are standing and seeing the world from a different...
23 treetoad3gsb Apr 28, 2002
4:50 am
--It is called the Malone or ACE or MACE. It involves the bowels. Hers is throught the bellybutton. A stoma is made using the appendix. Ennemas only get what...
24 proudmom45150 Apr 28, 2002
3:38 pm
Thanks! We are definitely looking forward to getting him started on using the standing frame and I do believe it will be beneficial. I was more curious about...
25 sbmomles Apr 29, 2002
12:35 am
My daughter used a standing frame for a little while. She hated it but it helped her to get the feel of what being upright was like. She then went into a...
26 sbmomles Apr 29, 2002
12:40 am
You answered my questions. My daughter gets lots of UTI's so the doc wants to put the button in to "hopfully"; cut down on that. We go on the 30th to schedule...
27 fb98 Send Email Apr 30, 2002
12:25 pm
www.bustercomics.com...
28 holdingon67 May 2, 2002
8:17 pm
Hello. are there any men out there in thier late 30's who have SB,Please if u r there give send me a short email just to know u exist.Kathy.my email is...
29 itsjustmeinct May 2, 2002
11:40 pm
1. What is your highest level of education and how was is financed? associates degree in respiratory therapy, music lessons-church organist, auto detailer-self...
30 geojess_01 Send Email May 3, 2002
2:43 am
Hi Jennifer, My son started using a prone stander around 12 months of age. Is that the same as a standing frame? If so then I will tell you that we were...
31 geojess_01 Send Email May 3, 2002
3:37 am
I am so glad that this site is available again! I hope that everyone is doing great! My first question is about shunt revisions. Has anyone had their child...
32 matri127 May 3, 2002
5:17 am
Our 15-month-old daughter has a parapodium (similar to a standing frame) and a dynamic stander (also called a mobile prone stander). Her orthopedic surgeon...
Messages 1 - 32 of 10681   Oldest  |  < Older  |  Newer >  |  Newest
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