Ashley- Don't give up. I am 23 years old and have had many many operations. I couldn't officially graduate with my high school class due to being sick I was...
Any ideas why my initial posting to this group about a month ago never showed up? Also I asked for individual emails and I don't get them...I have to come to...
Hi! I just wanted to say that last year (18 months ago) I was treated for a pressure sore that I suffered with for about a year prior. I ended up having a...
This is not your personal marketing and for profit forum for steve_court2003@.... Go make your own "spina bifida central members who want to put up with...
Sorry you feel that way, I have been helping people in this field for 8 years and that is what I do, "help"! I have designed powerchairs and manual ones for...
My daughter will be 13 tomorrow. She has is a L-1,T-12 spina bifida with hydrocephalus, chiara malformation, raynaud's syndrome, and absence of the corpus...
I am a single mother of two children of which one has spina bifida. It has been a rough year. You can read the decubitous ulcer I posted. In addition, my...
I am a new member and just wanted to say hello. I am a 30 year old mother of one (so far-number 2 is due end of September). Ray the 4th is my son, 17 months...
When I first posted my message, I felt discouraged, tired, and maybe a little self pity. I have been through an awful lot in my life here on earth. At 12...
When I first posted my message, I felt discouraged, tired, and maybe a little self pity. I have been through an awful lot in my life here on earth. At 12...
I thought group members might be interested in two new resources that we have developed are are available, at no-cost, on our Web site about preparing for the...
Hello everybody! If you use intermittent catheters please contact me for a free info pack and free samples. This system is designed for people who have had...
Ashley- Those words touched me so much! I am 23 years old and just really starting college...to know that you have gone to college had beautiful babies and...
Hi! I am 23 years old and have many similar things to your little guy. I was born 28 days early, I had my back closed at 12 hrs and at 19 days I had a VP shunt...
Hi- I am 23 years old. About 18 months ago I had the flap surgery for a pressure sore that was on my backside; before that we treated for about 9 months before...
When I was younger I had bouts of pity and depression, I got through it with laughter and jokes. WOW I'm handicapped, but I have my dignity I deal with some...
I have been asked the same things....when did you develop it and are you ever going to be rid of it and do you still have it?! Well duh its a birth defect so...
Hi, I was wondering if anyone here is from new hampshire? I'm looking for a place to go swimming that is handicapped accessible. Any information would be...
Hi... We had this same problem with our daughter up to the age of about 2 1/2 - 3. She would only eat baby food or liquids and we mixed tomato soup with...
Susan- Now that you say that I remember them telling my parents about this; I am 23 now but they discovered at the age of 10 that I had Arnold Chiari and that...
I am looking in the Eastern Kansas/Western Missouri area for options for volunteering. Anyone know of anything. Office work things like that would be right up...
Hi! I have tried emailing my reply to Aimee's mother with no success; so I wil share a little more here. My daughter was born with L-1, T- 12 mylomen. It was...
Hi! I ;live in NC also. When my daughter qualified for Mediacaid there were no limit on any visits! Contact your social services. Even if she gets it through...
My son and I have a problem. He has Mylo. Level 3 or 4. He has had 11 surgeries. Riley Children's Hospital is supposed to be the best in Indiana. He has had...
HI, I'm considering adopting a 4 year old boy with SB. I'm single, 42, work as a "court appointed special advocate" or Guardian ad Litem working with children...
I am a single adoptive Mom to 2 daughters with SB neither one of them are able to stand or walk. The oldest is 15 she was 7 1/2 months old when I got her. She...
Hi! i am a single-parent mother with two kids of which the oldest has spina bifida. I would encourage you to pray about the situation. I believe I hear enough...
If you are using catheters and you are washing and reusing them that is the best way to get bladder infections and eventually the urinary tract infection will...
... Let me congratulate you on your good motion after hearing your story in the group post I know the world is still better because of people like you. I have...
Hi, My daughter will be 12 on the 1st of Sept. and we are getting ready for her 4th surgery on Monday. The 2nd surgery that they did on her was a skin flap....
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