We have a 5 year old w/ SB L5, S1, S2, She is very active is ALWAYS stooling. We are trying to decide on the ACE procedure. Has anyone had it done this...
Hello, As for the ace my daughter has not have this done.But as for my Oldest daughter has sb and she has a younger sister. she has done wonderful through all...
Regarding the ACE procedure, we have a 16 year old daughter who is also about S1 - S2, and very active. At the time she was young, the ACE procedure did not...
Hi, My son had his MACE performed nearly 2 years ago this june, which is was about 4 months before his 5th birthday. In addition to his MACE he had his...
I have 2 daughters with SB, the oldest is 15 and the youngest is 7. The 15 year old uses a stoma cone attached to an enema bag and does it her self. The...
My daughter Tiffany Grace is just now 8 months old. She was born with spina bifida. The doctors were suprised at how huge her opening was. She has had a rough...
Hi-- Welcome. My daughter is now 16 and doing great, but she spent the first 3 months of her life in the ICU with several shunt revisions. Feel free to post...
hi everyone. im very confused about a shunt malfunction symptom. when im malfunctioning my hips seem to really bother me. my right hip mostly. it doesnt...
hi all. another message by me. about 15 years ago i had 2 spinal fusions and they used part of my rib to help fuse my spine. now it's irriating the heck out...
hi everyone. im very confused about a shunt malfunction symptom. when im malfunctioning my hips seem to really bother me. my right hip mostly. it doesnt...
hi all. another message by me. about 15 years ago i had 2 spinal fusions and they used part of my rib to help fuse my spine. now it's irriating the heck out...
Hello everyone, I am sorry that I have been out of touch lately. I have been busy with schoolwork. Anyway, I hope everyone is doing fine. I would also like to...
hi my name is tracey and i just found out my daughter who is 6 years old has spina bifida occulta.if any one has any info they can share it would be greatly...
Just wanted to intoduce my self, I have a 5 mos. old son, J. with spina bifida, his lesion is L5-S1. He was born on Christmas eve (of all days!)and had his...
Hello, my name is Danny and I wanted to know if you belong to a disabilities group. If so, I just wanted to know that if you would like to join another one...
Hi, I am looking for friends to hang out with. Girls MORE Please email or IM me at lovedfriend2005 Please have a picture if you can so I know who to look for...
Hi-- I just read your post where you said your son's scar was leaking, and I was just wondering how he's doing? If this happens again, I would HIGHLY suggest...
Hi to all. My name is Sara and I have a boy just over 2 months old who was born with Spina Bifida. The doctors say it is a rare and minor case. He has a...
Hi Sara! Congradulations on the birth of your son. I have a son, Jacob who is 5 mos. old. He did have an open cyst on his back and had to have surgery when he...
Hi to all, Thanks MrsFred for the message. I was wondering if anyone has had a Closed Cyst before. It has been a little hard to manuver around, but I'm...
Where are you from? and how old are u? Here on Vermont we have a place called Vocational rehad that will help people with a disablity to get there self self...
Hi-- My daughter was born with a closed myelomeningocele 16 years ago. As I understood it, a "closed" myelo just means that it is not leaking any fluid....
Thanks for the advice. I feel like we have a pretty good Neurologist, well kinda. I'm very unfamiliar with doctors (don't like them much, but who does, huh?)...
... is ... keeping ... you ... far ... older ... as ... He ... bottom. ... am ... lay ... right ... info ... hey sara, my name is amy i have a baby girl who is...
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