Or,you can come check out my Adult SB group, "Adults with Spina Bifida"(but please have a legit email account and make sure it's not full,Thank you).We've been...
I'm just curious if there are any mom's out there that have spina bifida? Are any of your confined to a wheelchair full time? How did you deal with the usual...
Hello Everyone. I'm a 19 yr old female with SB and having a hard time dealing with everything. If any1 has anything they could share it would be appreciated....
... hi im janet....i have spina bifida 2....whats amatta hon? i am 14 from nj...tell me whats wrong..i might be able to help...m sn on yahoo is dad2sgurl and...
Hi, My name is Krista and I am 22 and have SB. I would love to help you with dealing with the feelings you are having. As a young adult female I can totally...
kbatz, your post reminded me of a letter/reply written to/by Marguerite Kelley (Family Almanac columns). A woman who uses a wheelchair wrote, contemplating...
Christine~ lets talk hun, Alison here, im almost 18 and im probably goin through some of the exact same things that you are with kids and everything. my email...
Hey Guys! My name is Kaylee & I'm an 18 year old female w/ spina bifida. I'm a high school graduate soon to begin college. I am able to walk with a walker...
I would like to welcome all the new meber to the group and hope you all find this sight a great place to learn more about sb and make great friends . we are...
... I'm ... with ... and in a week I will be a senior. We need to talk girlie. My names Alison. I would love to have a penpal my age with SB. Thanx girlie!!...
There is always the worry of being off some place that your doctors aren't, but you should not stop life for being scared all the time that somehting is going...
hi friends i am a neurosurgeon who is involved in the treatment of spinal dysraphism. i wish to start a rehabilitation centre for symptomatic spinal dysraphism...
I am a 62 year old female who just discovered she has a "hidden" form of Spina Bifida. Any other adults in this group in the same boat? I also have scoliosis...
hI, I'VE JUST DISCOVERED THIS GROUP & AM VERRY THRILLED. TALK ABOUT MASELF LATTER. ... Do You Yahoo!? HotJobs, a Yahoo! service - Search Thousands of New Jobs ...
I am the mother of 2 SB children. My oldest daughter had bladder augmen. 2 years ago and it has turned out to be a nightmare! I allowed her to have the...
Hi - I am a new member. My name is Michelle and I have two sons, Connor, 4 and Aidan, 11 weeks. Aidan has been diagnosed with SB Occulta and tethered cord at...
Hello My name is Leola. I have a Seven Month baby with Spina Bifida and all the extras that come with it. I was wondering the best times to catch people in...
Hi all I have a question for all of you Elizabeth is supposed to have an artificial sphincter put in Sept 18th has anyone had this done or there children? ...
Here in Clevand and the Akron Area there is a radio station that is collecting used equipment and donating it to people who need it you can contact them by...
I am currently 30 weeks pregnant with my second child. She has been diagonised with an open spina bifida on her lower back. I am really confused and scard....
I can't tell you what to expect as a mother of a soon to be child with spinabifida but if you need help when she grows up on suggestions and stuff, please feel...
Hello Carrie, welcome to the sb group. the most important thing to think about and that is how you and the baby stay healthy , listen to what your doctors tell...
