Christine-- Here are the local chapters of the SBAA (Spina Bifida Association of America) in Texas. Hopefully, one of these will be near to you. **SBA of...
Someone just sent me this special e-mail, and I thought I'd share it-- I think most of us can relate..... ... edge ... his neck, "These puppies come from...
I recently accepted the challenge to raise funds by participating in Easter Seals Walk With Me Fredericksburg. Easter Seals is an amazing organization that...
hello im 15 years old when i was born i was diagnosed with spina bifida,and i am very fortunate that i am able to walk perfectly,and none of my friends even...
hi thank you for telling us your story this kind of stuff happens alot i am 15 and i have spina bifida myself and it is great to see someone as a caring as you...
Hi, I was born with spina bifida and struggled with weight most my life. I'm 34, 4ft. and about 10 pounds over weight. I haven't heard of any support group and...
Hi, I am 23 yrs old and about 4'11 and have struggled with my weight since I had to quit walkin when I was 10. I about probably a good 75 lbs overweight. I...
... sure nuff. I'm here Jen i'm from Michigan, 50 yr old.......lost 5 buddies on my buddy lists cuz i told them i had cancer and lost my leg last year. Guess...
Hello to all, My name is Barb and my hubby is Joe, he has SB. We have adopted 3 boys 5-4-1, two of them have SB and our oldest has Cerebral Palsy. I work at a...
Welcome Barb and family. Kudos to you on opening your heart to those with disabilities. That is very commendable of you, to not only marry someone with SB,...
quick rundown, i am 34, born with SB (myloemeningocele) and have three sons, twins 13, and an 11 yr old. When i was pregnant with the twins, i had the...
My daughter has myelomeningocele, and many years after she was born, my first cousin (an adult) discovered he had SB occulta. I'm sure it was just through an...
Hello everyone. My name is Tracy. I'm 33 years old, and I have spina bifida. I have 3 children, and I know how difficult it is to live with spina bifida. ...
Ladies I am with you. I am 34 and 4 ft 11 inches and about 50 pounds or so over weight not really sure of the exact weight because can't really weigh self very...
The myelo doctor came to a SB meeting one time to talk about the different kinds of SB and he said that occulta could be seen on an MRI and a person should...
Hi im a 47 yr old female with spina bifida occulta. I was diagnosed when I was born. From what I know the "hairy patch, lack of feeling, in feet and or legs,...
It's been less than twenty four hours since my pregnant wife and I found out that our baby girl(in our second trimester) has spina bifida. It has been an...
This sight is for parents and family member to get to know others with sb or to help with medical and make friend this is not used as a dating sight so please...
Hi-- Welcome to the group. Yes, it's quite a shock to learn for the first time that your baby has a disability. At least you are finding out now in the...
Hi everyone. i was thinking about having a huge calleous (thats what i think it is) taken off the side of my foot. I also have hammer toes, which are pretty...
... as ... an ... she ... something ... know ... also ... Vanderbilt ... program? ... you can obtain alot of info on sb at sbaa.org. it has multiple links that...
Thank you for the replies. Our daughter(second trimester) currently does not have hydrocephalus(it is not showing up on the ultrasound) but it is our ...
I will try to answer your questions the best I can. No, there are no doctors on this site, and despite the number of members in this group, it does not seem...
To Mel: I want you to know that I was born with Spina-Bifida and if you or your wife need to talk to someone you can contact me. I am 39 years old, and over...
Our daughter is almost 2 years old and has a myelmeningocoele at level S2. She is an absolute joy in our lives! We found out for sure that she had spina...
Hi. My daughter is almost 2 and we had the same problem with daycare. The solution reccomended by our doctor has worked very well. I don't know if your son...
Hi. My daughter is almost 2 with low level spina bifida. We have been trying to find other families in our are who can relate. We have contacted the Tri...
