spinabifidacentral : Messages : 1031-1060 of 7792

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1031	hi there i am from canada i have spinabifida i am 33...	misterious_26	Aug 5, 2004 7:56 am
1032	Reminder from the Calendar of spinabifidacentral http://groups.yahoo.com/group/spinabifidacentral/cal SpinaBifidaCentral Chat Friday August 6, 2004 10:00 am -...	spinabifidacentral@ya...	Aug 5, 2004 2:01 pm
1033	Hello. Glad you joined in the group. I am 21 and have SB. Anything you would like to know about spina bifida?...	lss532	Aug 5, 2004 2:28 pm
1034	Has anyone had the ACE procedure done? I'm looking into getting it done, and I want to know more about it. If anyone has any websites that I can look at ...	NSy4490831@... nsy4490831	Aug 5, 2004 7:10 pm
1035	Hello Everyone: Some of you might already know who I am. My name is Debra. I am 33 and I have Arnold Chiari Malformation Type I, ... I was 20+mm...	Ms. Debra Yetman debyet2002	Aug 5, 2004 9:48 pm
1036	I may be of some insight to the ACE procedure as that my son of 5 1/2 years had the procedure performed last year. Respond if you have any questions i will try...	dad_to_samuel_1098_sb... dad_to_samue...	Aug 6, 2004 7:59 am
1037	Reminder from the Calendar of spinabifidacentral http://groups.yahoo.com/group/spinabifidacentral/cal SpinaBifidaCentral Chat Friday August 6, 2004 10:00 am -...	spinabifidacentral@ya...	Aug 6, 2004 12:57 pm
1038	Hi Deb, It's great that you've chosen to join in this group. I have SB occulta, the mildest form of Spina Bifida. Since you say that you can help some of us...	lss532	Aug 6, 2004 2:28 pm
1039	Hi Debra, my name is Cindy, I am the mother of 22 yr son with Spina Bifida. I didn't know he had arnold chiari syndrone until he turned 21. My knowledge on...	Cindy lucas2431	Aug 8, 2004 10:24 pm
1040	Does anyone know of a spina bifida center in new brunswick,nj?A few years ago I saw on the internet, now I want to go, and I can't find it....	miriam856	Aug 9, 2004 11:46 pm
1041	Sorry, I have no clue. I would be happy to look it up for you. Ladan...	lss532	Aug 10, 2004 4:13 pm
1042	Here is info from the SBAA website on spina bifida clinics in NJ: Child Development Center Spina Bifida Clinic 3 Cooper Plaza, Suite 200 Camden, NJ 08103 ...	bfit516	Aug 11, 2004 2:07 am
1043	Proud Mom just has to brag a minute. I have 2 girls with Spina Bifida, and hydrocephalus. The oldest one is L1-L2 going into high school this year as a 9th...	mom2sbdaughters	Aug 12, 2004 1:42 am
1044	Congrats proud Mom, I'm sure your daughter is very proud, and Mom too. My son, who is wheelchair bound, joined track and field when he was in high school, he...	Cindy lucas2431	Aug 12, 2004 11:21 am
1045	Reminder from the Calendar of spinabifidacentral http://groups.yahoo.com/group/spinabifidacentral/cal SpinaBifidaCentral Chat Friday August 13, 2004 10:00 am -...	spinabifidacentral@ya...	Aug 12, 2004 1:58 pm
1046	Reminder from the Calendar of spinabifidacentral http://groups.yahoo.com/group/spinabifidacentral/cal SpinaBifidaCentral Chat Friday August 13, 2004 10:00 am -...	spinabifidacentral@ya...	Aug 13, 2004 12:55 pm
1047	I went to the chat room at 10:30am, no one was there.Which time is the most popular?...	miriam856	Aug 13, 2004 2:37 pm
1048	I have tried several different times, and I've never found anyone else in a chat room. There just does not seem to be that much daily activity here...	bfit516	Aug 13, 2004 4:45 pm
1049	The Evergreen Spina Bifida Association sponsers a moderated chat every Saturday evening at 6:00 p.m. Pacific time. Here is the link ...	linda8160	Aug 14, 2004 5:39 pm
1050	It seems you have to be a member of that group to get into the chat room. Where is the Evergreen SB Assoc. located?? What state? Thanks, Bobbie...	bfit516	Aug 15, 2004 4:01 pm
1051	Hi everyone! I am new. My name is Jill. I have a 13 year old son with spina bifida named Tom. This past year has been absolutely devastating to him. He used to...	jemima butt jemima_puddl...	Aug 16, 2004 12:32 pm
1052	Hi Jill, Welcome to the group. I think you'll find that the people in here are very supportive and often have great suggestions. My name is Stephanie and I'm...	Stephanie define_truth	Aug 16, 2004 2:12 pm
1053	hi all i am jessica i am 31 weeks pg with a baby who has S/B...	babygirl2319792000 babygirl2319...	Aug 17, 2004 3:55 pm
1054	Welcome to the boards. I'm an adoptive mom of 2 daughters with Spina Bifida age 14 and 6. If you have SB questions people here will be glad to answer them for...	mom2sbdaughters	Aug 17, 2004 8:30 pm
1055	Hello Stephanie, I just read your post regarding going to DisneyWorld and would be interested in knowing more. We live in Ontario and my daughter has her heart...	hobbies4u	Aug 19, 2004 2:22 am
1056	Hello :) I'm so glad that you're interested in this for your child. I know for me that it was an unforgettable experience that, even now, I remember. I can't...	Stephanie define_truth	Aug 19, 2004 3:38 am
1057	Reminder from the Calendar of spinabifidacentral http://groups.yahoo.com/group/spinabifidacentral/cal SpinaBifidaCentral Chat Friday August 20, 2004 10:00 am -...	spinabifidacentral@ya...	Aug 19, 2004 1:56 pm
1058	Thank you steph and everyone else for your suggestions. It is nice to meet other people who understand what we're going through. I will continue to work on...	jemima_puddlebutt jemima_puddl...	Aug 19, 2004 3:32 pm
1059	Reminder from the Calendar of spinabifidacentral http://groups.yahoo.com/group/spinabifidacentral/cal SpinaBifidaCentral Chat Friday August 20, 2004 10:00 am -...	spinabifidacentral@ya...	Aug 20, 2004 12:57 pm
1060	Hi, I have a question.does anyone have a problem with there feet turning purple at certain times and if so what did the dr tell you about it.:) Thanks Christi...	CHRISTI COOK cmcook6871	Aug 22, 2004 4:22 pm

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