I live in minnesota nd ahve a daughter who is 11 with SB I just started a yahoo group called spinabifidaminnesota... for anyone who lives in minnesota and...
10187
Denise Gunderson
denise_labine
Nov 8, 2011 5:43 am
I live in ND but come to Minnesota a lot. I have relatives there and all my SB doctors are there. I live about 4 hours away from MN. Susanna, can I join your...
10188
Susie Derner
spinabifidam...
Nov 8, 2011 2:30 pm
That would be fine for you to join even though you live in ND... I thought it would be a good group to start and try to get some connections that are close...
10189
Sara Schneider
coffteawoman...
Nov 12, 2011 6:17 pm
I'm starting to do research on internships and I found a two year internship I'd absolutely LOVE. It's a paid internship. Well, technically. I'm required to...
10190
Amber Kops
hot_blonde_o...
Nov 12, 2011 7:38 pm
I don't have experience with this type of internship, but here's what I can tell you about SSI rules. The first $20 of most income received in a month plus the...
10191
Sara Schneider
coffteawoman...
Nov 12, 2011 7:44 pm
I'm well aware of how SSI works. That wasn't what I asked. If I needed clarification on that, I would have not only asked that, I am capable of accessing the...
10192
Tracy
tcburns35
Nov 15, 2011 4:15 pm
My daughter has the ace procedure we use Saline water 500 ml and sometimes we also use mineral oil in her cescostomy. We shoot that into her by a syringe. This...
10193
karen muller
karenmuller41
Nov 15, 2011 4:26 pm
Hi to everyone Has anyone taken there child for UMBILICAL CORD stem cells ?? Beike Biotech
is the leading company in the world doing already over 10 000...
10194
Linda W
westman671
Nov 15, 2011 5:27 pm
Karen, what kind of benefits? What is the cost? Thanks, and, yeah, umbilical cord stem cells also avoids the obvious ethical issues with embryonic stem cells....
10195
Sara A
foxsea77
Nov 21, 2011 6:43 pm
Hello, I'm hoping someone can help. I am a 33 yr old female with Spina Bifida. A few years back it was discovered that my spine is tethered. Surgery...
10196
Heather
hcmerrell
Nov 21, 2011 7:48 pm
Honestly Sara, your snotty response to Amber was so off putting to me that I've decided not to give you my input. If you don't want advice and can't take what...
10197
Kalen
trapadlrow
Nov 21, 2011 11:05 pm
I would guess that Christ would also be forgiving of people who have poor social skills. Kalen...
10198
Sara Schneider
coffteawoman...
Nov 23, 2011 2:20 am
I would definitely recommend surgery. The less amount of time you're on pain killers, the less of a chance you have to develop a dependency. ...
10199
sarahgdx
Nov 27, 2011 9:58 pm
Dear Members, I am a woman born with Spina Bifida. I have created a Petition because a woman in Washington had her Service Animal stolen. The people...
10200
Peggy Shields
penguinscoutmom
Nov 30, 2011 10:28 am
I am woefully behind on e-mails... is it to late to do tis? Â Peggy J. Shields Teen Scout Troop 3504 The work of today is the history of tomorrow, and we are...
10201
Annie Donahue
anniebethdon...
Nov 30, 2011 1:23 pm
We've already sent the catheters to the container that is going to Africa. However, we will be doing this periodically, so Signposts Ministries can collect...
10202
gkwalker@...
gkwalker...
Dec 10, 2011 4:27 pm
I have a grade 4 pressure sore. This is the first pressure I have had. Any advice to help it heal as soon as possible, apart from the obvious of spending time...
10203
Sara Schneider
coffteawoman...
Dec 10, 2011 5:13 pm
Talk to your doctor. We are not doctors. ________________________________ From: "gkwalker@..." <gkwalker@...> To:...
10204
karen muller
karenmuller41
Dec 10, 2011 5:29 pm
Hi there I am a firm believer in HYDROGEN PYROXIDE volume 10 . Years ago before
Savlon and Dettol disenfectant came out in the hospitals ,they used this
HPvol...
10205
Sara Schneider
coffteawoman...
Dec 16, 2011 3:17 am
Next month, Morgan's Wonderland, the world's first ultra-accessible family fun park designed with special-needs individuals in mind, in San Antonio, TX is...
10206
Sara A
foxsea77
Dec 22, 2011 2:41 pm
Hello, I am wondering if anyone has either had or knows anything about a procedure called Lumbar Epidural Sympathetic Block. It is recommended that I get...
Hi All, Question for those of you that have the Mitrofanoff. Have any of you had it for years with out a problem then all of a sudden you have trouble getting...
10209
Nancy Quarles
cheyrissesse
Dec 26, 2011 10:01 pm
My daughter had to have her mitrofanoff revised when hers did that. As she grew things kinda shifted a little and there was a piece of tissue blocking it. They...
10210
Annie Donahue
anniebethdon...
Dec 27, 2011 7:12 pm
Anna had surgery last January and we have yet to achieve bowel continence. She has a very loose sphincter (pretty much doesn't exist) so nothing stays in. The...
10211
Dara Sinnett
daras1104
Dec 28, 2011 9:44 pm
My personal opinion is that is dangerous. Instilling water into the intestinal track 2x daily should NOT be necessary. Talk to the Dr. Pretty good...
10212
Sara Schneider
coffteawoman...
Dec 29, 2011 8:27 pm
To anyone that watches Biggest Loser: One of the contestants on the new season that starts Jan 3rd, Buddy of the brown team, is the father of a girl with Spina...
10213
hehas4givn@...
nate9thegreat
Jan 1, 2012 4:35 pm
... When my son had his procedure, they flushed his MACE three times in one day in order to ensure he was cleaned out to go home and be on his own, so I don't...
10214
Angel Moore
amoore3596
Jan 2, 2012 2:22 pm
Hey Annie! With all that Brianah went through, I am very happy to say that she rarely has accidents. We flush daily with 420 cc's of warm water. Although, we...
10215
Dara Sinnett
daras1104
Jan 2, 2012 8:46 pm
It seems to me that doing it more than once a day defeats the purpose of having it in the first place. It does take a while to establish a successful routine...
