Wow! That is like driving somewhere on vacation...I wonder why some of the Dr.'s
havent tried to start a clinic somewhere close...are there not that many people
or children with SB in that area?

--- On Sat, 7/11/09, Naomi TeStroote <tinymamabear@...> wrote:

From: Naomi TeStroote <tinymamabear@...>
Subject: Re: [Spina Bifida Central] Ok, I am soooo tired of hearing this
To: spinabifidacentral@yahoogroups.com
Date: Saturday, July 11, 2009, 11:47 AM

















I dont have a ped. they are rare here, the family doctor sees both my kids
for vaccines and such, but her nuro is in Great Falls MT 1 hour and 45 mintues
away depending on MT weather, her uro is 2 hours away in Missoula MT depending
on MT weather again, and ortho was 6+ hours away in Spokane WA depending on
weather in MT ID and WA but depending on what happens to the one in Spokane that
drive could turn into a 9+ hour drive to Portland OR depending on MT, ID, and OR
weather. I had to have my daughter in Great Falls because Helena cant do SB I
cannot even take my daughter to the ER for example a broken arm because they no
nothing of SB. I wont even take my non-sb child to the hosptial here in Helena I
will drive to Missoula or Great Falls for the Better care.



____________ _________ _________ __

From: "counselorwillingham @yahoo.com" <counselorwillingham @yahoo.com>

To: spinabifidacentral@ yahoogroups. com

Sent: Saturday, July 11, 2009 7:39:38 AM

Subject: Re: [Spina Bifida Central] Ok, I am soooo tired of hearing this



It is wonderful that you have been able to find separate private docs who are
knowledgeable in treating the many and diverse issues that can accompany SB! I
have to drive an hour to either of the SB clinics available and I preferred ones
approach better than the other! But in my area of NC I have found that even the
local pediatricians know little about therapeutic care for SB and have no
knowledge of recent studies! I sometimes wish I lived in an area where
physicians had knowledge of this condition! My ped doc here told me I know more
than she does and only sees my son for well checks!

Sent via BlackBerry by AT&T



-----Original Message-----

From: Catherine Recchini <csprncs77@yahoo. com>



Date: Sat, 11 Jul 2009 06:32:53

To: <spinabifidacentral @ yahoogroups. com>

Subject: Re: [Spina Bifida Central] Ok, I am soooo tired of hearing this



that is OK though you can often find good medical care without going to an sb
clinic and that's great if you do but my point was and is , is that going to one
is sooo much different than seeing seperate doctor's that if you dont' go to one
or never have been to one your not aware of how differently they handle thing's
and the info that they do give out and go by so going by what your physician's
are telling you to do is not a reason to tell someone else that does go to an sb
clinic that what they repeat is wrong that's all i was saying.



Catherine Recchini

Upstate NY



____________ _________ _________ __

From: Naomi <tinymamabear@ yahoo.com>

To: spinabifidacentral@ yahoogroups. com

Sent: Saturday, July 11, 2009 8:34:10 AM

Subject: [Spina Bifida Central] Ok, I am soooo tired of hearing this



We DO NOT have an SB clinic in my state so we have to travel to get to some of
my daughters doctors. I get asked all the time why dont I just go to a Sb
clinic, and when I say we dont have one the east coast mantilty of since we have
it EVERYONE has it seems to kick in and they dont belive me, I am soo sick of
haveing to explain it to people wheather in here (rarely) or any of the other
groups and boards I am a member of.



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