no that wasnt me i dont have a very good "regular" doctor at all in fact he has
a tendency to continusally misdiagnose me with things that are normal for
someone with sb and my level we finally agreed let the sb clinic care for sb
issues and if i have the flu or a minor wound ill go to him because it did get
very ridiculous. the only thing i didnt mess with and this is because i've been
very lucky that i dont have the issues other's have is my ob/gyn he knows every
aspect of sb right down to the shunt and its issues, but thats also something i
do not deal with as mine has been non-functioning since about age 9.

Catherine Recchini
Upstate NY




________________________________
From: "counselorwillingham@..." <counselorwillingham@...>
To: spinabifidacentral@yahoogroups.com
Sent: Saturday, July 11, 2009 9:39:38 AM
Subject: Re: [Spina Bifida Central] Ok, I am soooo tired of hearing this





It is wonderful that you have been able to find separate private docs who are
knowledgeable in treating the many and diverse issues that can accompany SB! I
have to drive an hour to either of the SB clinics available and I preferred ones
approach better than the other! But in my area of NC I have found that even the
local pediatricians know little about therapeutic care for SB and have no
knowledge of recent studies! I sometimes wish I lived in an area where
physicians had knowledge of this condition! My ped doc here told me I know more
than she does and only sees my son for well checks!
Sent via BlackBerry by AT&T

-----Original Message-----
From: Catherine Recchini <csprncs77@yahoo. com>

Date: Sat, 11 Jul 2009 06:32:53
To: <spinabifidacentral@ yahoogroups. com>
Subject: Re: [Spina Bifida Central] Ok, I am soooo tired of hearing this


that is OK though you can often find good medical care without going to an sb
clinic and that's great if you do but my point was and is , is that going to one
is sooo much different than seeing seperate doctor's that if you dont' go to one
or never have been to one your not aware of how differently they handle thing's
and the info that they do give out and go by so going by what your physician's
are telling you to do is not a reason to tell someone else that does go to an sb
clinic that what they repeat is wrong that's all i was saying.

Catherine Recchini
Upstate NY




____________ _________ _________ __
From: Naomi <tinymamabear@ yahoo.com>
To: spinabifidacentral@ yahoogroups. com
Sent: Saturday, July 11, 2009 8:34:10 AM
Subject: [Spina Bifida Central] Ok, I am soooo tired of hearing this





We DO NOT have an SB clinic in my state so we have to travel to get to some of
my daughters doctors. I get asked all the time why dont I just go to a Sb
clinic, and when I say we dont have one the east coast mantilty of since we have
it EVERYONE has it seems to kick in and they dont belive me, I am soo sick of
haveing to explain it to people wheather in here (rarely) or any of the other
groups and boards I am a member of.







[Non-text portions of this message have been removed]



[Non-text portions of this message have been removed]







[Non-text portions of this message have been removed]