that is OK though you can often find good medical care without going to an sb
clinic and that's great if you do but my point was and is , is that going to one
is sooo much different than seeing seperate doctor's that if you dont' go to one
or never have been to one your not aware of how differently they handle thing's
and the info that they do give out and go by so going by what your physician's
are telling you to do is not a reason to tell someone else that does go to an sb
clinic that what they repeat is wrong that's all i was saying.

Catherine Recchini
Upstate NY




________________________________
From: Naomi <tinymamabear@...>
To: spinabifidacentral@yahoogroups.com
Sent: Saturday, July 11, 2009 8:34:10 AM
Subject: [Spina Bifida Central] Ok, I am soooo tired of hearing this





We DO NOT have an SB clinic in my state so we have to travel to get to some of
my daughters doctors. I get asked all the time why dont I just go to a Sb
clinic, and when I say we dont have one the east coast mantilty of since we have
it EVERYONE has it seems to kick in and they dont belive me, I am soo sick of
haveing to explain it to people wheather in here (rarely) or any of the other
groups and boards I am a member of.







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