Hi I wear more like an attens but it is not full sides. Do you change it even
if it is not damp or wet? If it is dry what do you do?
thanks jackie
----- Original Message -----
From: Amber Kops
To: spinabifidacentral@yahoogroups.com
Sent: Sunday, June 07, 2009 2:03 PM
Subject: Re: [Spina Bifida Central] neurogenic bladder





Hi Jackie,

I actually wear an attends brief. I have tried wearing a pad with underwear
and had some bowel accidents, thankfully all at home and so I've just stuck with
the attends. I typically change it with every cath to try to keep any bacteria
from breeding. What I would suggest to you is gauge how much you've been
typically leaking and see if a pad will work for you or if you need more
protection. Good luck!

Amber K.

----- Original Message -----
From: Jackie
To: spinabifidacentral@yahoogroups.com
Sent: 6/5/2009 8:51:05 AM
Subject: Re: [Spina Bifida Central] neurogenic bladder

Hi
when you say change your under garment do you mean a pad that you are wearing?
I am just trying to figure out if that might work for me. I am just getting back
in to staying dry inbetween cathing after dethering surgery. I have been having
infections and wonder if changing my under garment might work. That is why I am
claraifying if that means a pad or some incontence product.
thanks jackie
----- Original Message -----
From: Amber Kops
To: spinabifidacentral@yahoogroups.com
Sent: Saturday, May 30, 2009 4:38 PM
Subject: RE: [Spina Bifida Central] neurogenic bladder

I've been cathed/cathing every 3-4 hours since I was a baby. I am to use a new
catheter every time with a pair of gloves, iodine, and change my undergarment. I
admit I don't always change my undergarment when I'm out in public because it
makes cathing a little longer cuz I do it in my chair, but I change every other
time when in public. When I was a kid I had so many UTI's I became tolerant to
all oral medications and had to start taking IM injections and IV drugs. That
finally went away after a while thank fully. That was like 17 years ago though
so I don't remember how. Now when I get up in the morning I take my Ditropan
with a glass of Cranberry juice, drink at least 4 glasses of water a day, have a
bowel program of taking 1-2 Senna tablets every day which works good for the
most part, accidents are fewer. I also have the reflux in my kidneys which
doesn't help with infections either. I did take Macrodantin for about 10 years
but then some kind of study came out that said people who take it for longer
than 6 months have a chance of getting fibrosis in the lungs so my Urologist
took me off of it and put me on Hiprex (also called Mandelamine) as a
prophylactic. In addition to that I have a Gentamycin/Sterile Water combo that I
do through a catheter after cathing twice a day. I also take Imipramine which
treats the reflux in my kidneys. I started that whole Ditropan, Hiprex,
Imipramine combo when I was 17 or 18 and since then my reflux has been under
control and is now no more than a grade 2 on bad days and I on ly have problems
with major infections 1 or 2 times a year. I do get smelly cloudy urine if I'm
not having a good week with my bowel program and am backed up though. That
usually clears up when I clean them out though.

Hope that was helpful!

Ambe K.

----- Original Message -----
From: tHeRes3
To: spinabifidacentral@yahoogroups.com
Sent: 5/29/2009 11:33:09 PM
Subject: [Spina Bifida Central] neurogenic bladder

Hi everyone. My daughter 13 months old has L4 SB. I cath her 3x a day
and lately she has been having episodes of UTI for the first time. She
doesnt leak as much as before though which i assumed was a good thing
but then she is now getting UTI's. She's been on & off antibiotics from
keflex to bactrim, but the bacteria comes & goes. I know this is the
nature of SB but having frequent UTI's in 2 months worries me.
How does having frequent UTI's affect kids with SB??..What
complications can occur?
Any tips on how to prevent it? how do i do a very safe &
clean catheterization? I now even clean her using mineral water before
introducing the cath..
Will the risks of getting UTI's become less as they get older?

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