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neurogenic bladder   Message List  
Reply | Forward Message #6822 of 8037 |
Re: neurogenic bladder

--- In spinabifidacentral@yahoogroups.com, "tHeRes3" <tgwagas@...> wrote:
>
> Thanks so much everyone. I cant wait to ask her doctor about D-Mannose.
>
>
> Therese
>
>
>
>
> --- In spinabifidacentral@yahoogroups.com, "usolyfan2" <usolyfan@> wrote:
> >
> > My daughter had a UTI last week (her third in as many months). We started
her on D-Mannose. It is a natural sugar derived from the cranberry. It is
completely safe and has no side effects. It does not change the body's PH
levels and since very little is absorbed by the body it is safe for diabetics.
It works by making the bladder incompatible for e-coli bacteria. This only
works for a UTI caused by e-coli (but for people with SB, most are). It can be
used to treat an existing UTI or on a daily basis to prevent them. I bought it
at the health food store but you can also order it online. BTW, I asked my
daughter's pediatrician about it and she told us to "Go for it, if it works
great! We have nothing to lose"
> >
> >
> >
> >
> >
> > --- In spinabifidacentral@yahoogroups.com, "tHeRes3" <tgwagas@> wrote:
> > >
> > > Hi everyone. My daughter 13 months old has L4 SB. I cath her 3x a day
> > > and lately she has been having episodes of UTI for the first time. She
> > > doesnt leak as much as before though which i assumed was a good thing
> > > but then she is now getting UTI's. She's been on & off antibiotics from
> > > keflex to bactrim, but the bacteria comes & goes. I know this is the
> > > nature of SB but having frequent UTI's in 2 months worries me.
> > > How does having frequent UTI's affect kids with SB??..What
> > > complications can occur?
> > > Any tips on how to prevent it? how do i do a very safe &
> > > clean catheterization? I now even clean her using mineral water before
> > > introducing the cath..
> > > Will the risks of getting UTI's become less as they get older?
> > >
> >
>hi EVERYONE I HAVE SB AND CRANBERRY REALLY HELP ME ALOT. I HAVE BEEEN USING
CRANBERRY IN TABLET AND THE JUICE SENSE I WAS 7 YRS. OLD. NOW I AM 40!!!! JUST
HAD A B-DAY MAY 22,2009.





Mon Jun 1, 2009 2:49 pm

gemini982
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Message #6822 of 8037 |
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Hi everyone. My daughter 13 months old has L4 SB. I cath her 3x a day and lately she has been having episodes of UTI for the first time. She doesnt leak as...
tHeRes3
tgwagas
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May 30, 2009
3:33 am

My daughter is 4 1/2 wih T-10 SB. We cath every three hours. She has had lots of UTI's, mostly e.coli. I have talked to dr. about prophalactic...
Elizabeth Tiedemann
e.tiedemann
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May 30, 2009
1:51 pm

We had to switch to sterile cathing...using iodine and everything is sterile...and we dont use the same catheter twice. Brianah has taken macrodantin every...
Angela
amoore3596
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May 30, 2009
2:56 pm

I've been cathed/cathing every 3-4 hours since I was a baby. I am to use a new catheter every time with a pair of gloves, iodine, and change my undergarment....
Amber Kops
hot_blonde_o...
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May 30, 2009
8:38 pm

I did take Macrodantin for about 10 years but then some kind of study came out that said people who take it for longer than 6 months have a chance of getting...
Naomi TeStroote
tinymamabear
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May 30, 2009
9:06 pm

Cathing increases the risk of UTIs.? That's just one of the risks, unfortunately. Are you re-using catheters, or just using them once?? Re-using increases the...
hcmerrell@...
hcmerrell
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May 31, 2009
12:42 am

My now 5 yer old gets a VCUG done every yer to see how her kidneys are doin, we have NEVER re-used caths. and there is a new law for medicaid and such to help...
Naomi TeStroote
tinymamabear
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May 31, 2009
12:56 am

My daughter is almost 6 and gets a urodynamics study, VUCG, every year and this year she also got a Neucular Medicine test....
Angela
amoore3596
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May 31, 2009
1:00 am

My daughter had a UTI last week (her third in as many months). We started her on D-Mannose. It is a natural sugar derived from the cranberry. It is...
usolyfan2
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May 31, 2009
2:49 pm

Thanks so much everyone. I cant wait to ask her doctor about D-Mannose. Therese...
tHeRes3
tgwagas
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Jun 1, 2009
3:21 am
Jacqueline Pender
gemini982
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Jun 1, 2009
2:49 pm

Hi when you say change your under garment do you mean a pad that you are wearing? I am just trying to figure out if that might work for me. I am just getting...
Jackie
jpentland1@...
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Jun 5, 2009
12:51 pm

would it work for adults or just children? take care jackie ... From: usolyfan2 To: spinabifidacentral@yahoogroups.com Sent: Sunday, May 31, 2009 10:49 AM ...
Jackie
jpentland1@...
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Jun 5, 2009
6:35 pm

Yes, it works for adults too. The recommended dose for an adult is one teaspoon....
usolyfan2
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Jun 6, 2009
4:10 pm

________________________________ From: Jackie <jpentland1@...> To: spinabifidacentral@yahoogroups.com Sent: Friday, June 5, 2009 2:34:34 PM Subject: Re:...
Jackie Pender
gemini982
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Jun 8, 2009
8:12 pm

Hello everyone, I read all posts but post only when necessary.Just wanted to add my experience with my son's UTIs history. He too got frequent UTIs upto the...
jacqueline
jrenuvictor2003
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Jun 9, 2009
6:45 pm

Hi Jackie, I actually wear an attends brief. I have tried wearing a pad with underwear and had some bowel accidents, thankfully all at home and so I've just...
Amber Kops
hot_blonde_o...
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Jun 7, 2009
6:04 pm

Hi when you mean drink lemon juice daily do you mean mixed with water or plain lemon juice? Another question about the lemon juice how many times a day? ...
Jackie
jpentland1@...
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Jun 9, 2009
10:16 pm

Her dr. said to buy the concetrated lemon juice and "mix like lemonade."  I time per day. This must change the ph somehow? ... From: Jackie...
Elizabeth Tiedemann
e.tiedemann
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Jun 9, 2009
10:59 pm

I've been a great believer in the use of citric acid (juices in all citric fruits) for many years, in my case, it reduces the chances of severe infection by...
John
wheelzuk
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Jun 10, 2009
2:44 pm

thank you all so much for this imput. My grangirl (16 mths) has had more trouble this year with uti's. I recently found some gov't reasearch studies as to...
Kelley Dillon
dkelleygirl
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Jun 12, 2009
1:13 am

Hi Kelley & everyone, My daughter and I just came from her urologist today. I finally got an appointment to see him. Anyway He still suggested to continue ...
tHeRes3
tgwagas
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Jun 12, 2009
8:58 pm

Hi when you say drink lemon juice does this mean plain? Or can you put the lemon juice in water and it would work the same? thanks jackie ... From: Elizabeth...
Jackie
jpentland1@...
Send Email
Jun 22, 2009
3:33 am

Hi I wear these things between a pad and a breef. I have to still wear a pair of underwar with them as they just have a thin strap at the top and it covers...
Jackie
jpentland1@...
Send Email
Jun 29, 2009
1:09 pm

Hi thanks. I think I will try it tired of getting infections. It is natural and I think that is the best if things can be dealt with that way. take care...
Jackie
jpentland1@...
Send Email
Jul 3, 2009
5:45 pm

White vinegar?? How much do u put in the bath water?? Sent from my iPhone On Jul 3, 2009, at 12:44 PM, "Jackie" <jpentland1@...> wrote: Hi thanks. I...
Deana Vangel
deanavangelesq
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Jul 3, 2009
7:50 pm

Hi I wear more like an attens but it is not full sides. Do you change it even if it is not damp or wet? If it is dry what do you do? thanks jackie ... From:...
Jackie
jpentland1@...
Send Email
Jul 6, 2009
3:18 pm

Hi is this the lemon juice that is in the bottles. Does this just mean that you add the 4 cups of water. Would you have to add sugar? thanks jackie ... From:...
Jackie
jpentland1@...
Send Email
Jul 7, 2009
1:54 am

Generally I change it with every cath, damp or dry. If I am out for a long time during the day I'll change it every other time (kinda difficult to change in...
Amber Kops
hot_blonde_o...
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Jul 7, 2009
8:48 pm
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