Hi Shanda,
I am 21 weeks along. Thank you very much for your
encouraging words.
I will keepo the group posted.
Yvette
ayn0@...
--- shanda joyce <blueyez45365@...> wrote:
>
> Hi Yvette,
>
> First of all I know things are probably getting
> scary but let me say congrats on getting your baby
> girl. How far along are you? From what you decribed,
> it sounds like Olivia's will be around the same spot
> as mine, I have it right at the top of my crack. I
> had no fluid on the brain at all. I am fully
> functional when it comes to walking. I even had 2
> children of my own...both boys and without SB. I'm
> 33 years old by the way. My disabilities from the SB
> were that I didnt have any bladder control and only
> partial bowel control. That was the only thing that
> was affected on me. Through many surgeries and with
> the help of a special Artificial Sphencter Implant,
> it's helped me stay dry to be as "normal" as
> possible.
>
> I'm not really sure what else to tell you, but just
> take things day by day. SB is so different in
> everyone, you just have to go by that individual
> person then learn as much as you can to live with
> what you've been given. Your presious little girl
> will truly be a blessing to your life and I wish you
> only the best. If you ever need to talk more feel
> free to write.
>
> Shanda Joyce
> blueyez45365@...
>
>
> ----- Original Message ----
> From: ayn0 <ayn0@...>
> To: spinabifidacentral@yahoogroups.com
> Sent: Friday, March 7, 2008 6:05:36 AM
> Subject: [Spina Bifida Central] new
>
> My family just found out that our 4th and finally
> baby ( girl) has
> spina bifida. I do not know exactly which vertebre
> it is but as the
> doctor said if she was a plumber it would be right
> where her plumbers
> crack is. During our ultrasounds she is full of
> energy. They could
> not ever resex her ( just to be sure) on the level 2
> ultrasound because
> she would not sit still. So far there is not any
> fluid on her brain.
> Now begins our very long journey. We are still
> waiting for our
> appointment witht the neurosurg. and the NICU at
> Rhode Island
> Hospital. We have read just about everything about
> SB and still have
> no idea what to expect, mainly because they say they
> will not know
> anything until our little Olivia is born.
>
> Just was wondering if anyone had some insight that
> might help.
>
> Thank You and God Bless
> YVette Anger
> Taunton, MAssachusetts
>
>
>
>
>
>
>
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