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Reply | Forward Message #4111 of 8159 |
Re: [Spina Bifida Central] new

Hi Shanda,
I am 21 weeks along. Thank you very much for your
encouraging words.

I will keepo the group posted.

Yvette
ayn0@...
--- shanda joyce <blueyez45365@...> wrote:

>
> Hi Yvette,
>
> First of all I know things are probably getting
> scary but let me say congrats on getting your baby
> girl. How far along are you? From what you decribed,
> it sounds like Olivia's will be around the same spot
> as mine, I have it right at the top of my crack. I
> had no fluid on the brain at all. I am fully
> functional when it comes to walking. I even had 2
> children of my own...both boys and without SB. I'm
> 33 years old by the way. My disabilities from the SB
> were that I didnt have any bladder control and only
> partial bowel control. That was the only thing that
> was affected on me. Through many surgeries and with
> the help of a special Artificial Sphencter Implant,
> it's helped me stay dry to be as "normal" as
> possible.
>
> I'm not really sure what else to tell you, but just
> take things day by day. SB is so different in
> everyone, you just have to go by that individual
> person then learn as much as you can to live with
> what you've been given. Your presious little girl
> will truly be a blessing to your life and I wish you
> only the best. If you ever need to talk more feel
> free to write.
>
> Shanda Joyce
> blueyez45365@...
>
>
> ----- Original Message ----
> From: ayn0 <ayn0@...>
> To: spinabifidacentral@yahoogroups.com
> Sent: Friday, March 7, 2008 6:05:36 AM
> Subject: [Spina Bifida Central] new
>
> My family just found out that our 4th and finally
> baby ( girl) has
> spina bifida. I do not know exactly which vertebre
> it is but as the
> doctor said if she was a plumber it would be right
> where her plumbers
> crack is. During our ultrasounds she is full of
> energy. They could
> not ever resex her ( just to be sure) on the level 2
> ultrasound because
> she would not sit still. So far there is not any
> fluid on her brain.
> Now begins our very long journey. We are still
> waiting for our
> appointment witht the neurosurg. and the NICU at
> Rhode Island
> Hospital. We have read just about everything about
> SB and still have
> no idea what to expect, mainly because they say they
> will not know
> anything until our little Olivia is born.
>
> Just was wondering if anyone had some insight that
> might help.
>
> Thank You and God Bless
> YVette Anger
> Taunton, MAssachusetts
>
>
>
>
>
>
>
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> [Non-text portions of this message have been
> removed]
>
>




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Fri Mar 7, 2008 11:30 am

ayn0
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Message #4111 of 8159 |
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hi my name is tracey and i just found out my daughter who is 6 years old has spina bifida occulta.if any one has any info they can share it would be greatly...
traosm
Offline Send Email
May 25, 2005
1:27 pm

My family just found out that our 4th and finally baby ( girl) has spina bifida. I do not know exactly which vertebre it is but as the doctor said if she was...
ayn0
Offline Send Email
Mar 7, 2008
11:05 am

-Yvette- Hi my name is Kristen. I think It sounds like your baby is probably in pretty good shape as far as spina bifida goes. I am not an expert but I know...
chiefsgal3288
Offline Send Email
Mar 20, 2008
6:22 am

Hi Yvette, First of all I know things are probably getting scary but let me say congrats on getting your baby girl. How far along are you? From what you...
shanda joyce
blueyez45365
Offline Send Email
Mar 7, 2008
11:25 am

Hi Shanda, I am 21 weeks along. Thank you very much for your encouraging words. I will keepo the group posted. Yvette ayn0@... ... ...
Yvette Hebert
ayn0
Offline Send Email
Mar 7, 2008
11:31 am

Hello- It was just a year ago that I was in your exact position. My husband and I found that our second child was a boy...and that he has spina bifida. His...
Stacey Adams
l_adams_s
Offline Send Email
Mar 7, 2008
2:46 pm

Hi Yvette - I would recommend that you also join SBMoms-N-Dads Yahoo group. They will be a wonderful resource for you. And continue to learn all that you can...
kk_315
Offline
Mar 7, 2008
3:20 pm
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