Thanks to those who responded to my letter. I suppose we all will have bad days,
I was having a BAD one. I try to take one day at a time and believe God is the
one who gets me thru each day. I too was told abortion was an option, I told my
MD, No it's not. I will care for my child no matter what. I count my blessing
everyday for Kameron. Kameron has lots of medical needs but he is able to walk.
I am so thankful for this support group.

Yvette

Alma Rosa <unmixchicana805@...> wrote:
--- In spinabifidacentral@yahoogroups.com, P S Mayo <oyamps@...>
wrote:
>
> So Sorry to hear this but I am sure that your 5 yr old doesn't hate
you. We are new to all of this so we have a long way to go. My
grandson was born March 17 with SB. I just wanted to tell you that
my son said he hated me at 5yrs old also and he was going to go live
with his Aunt, to make a long story short, my son is now in his 30's
and he tells me he loves me now and my daughter also has told me this
too when she was younger. Now she has a little boy with SB and I am
so very proud of her because of course the Dr told her she could
abort my beautiful grandson and she said no that she would put it in
God hands and we have our special little boy, Landry, My son has a
little girl who has cerable palsy and she is 3 yrs old, she can't
walk, talk or crawl but she always has a beautiful smile on her face
and she is a joy to us too and she loves her daddy very much. Trust
in God, he is good.
> Penny from Texas
>
> Yvette Frederick <evttefred77@...> wrote:
> My son Kameron ( 5 yrs old) and I are having major
problems. He blames me for all the medical things done to him daily.
He finds every excuse not to do his catheter, medication,
suppository.....etc. He loved school the last 2 yrs.... now HATES it.
He cries every morning not to go to school. He is now crying for 30
minutes for his dad who works away, he's only home Sat. night until
Sun about 5 pm. He is a BIG help when home. I HATE THIS.... I HATE
THIS! Everyday is a FIGHT. His monthly flush for medi-port a couple
of days ago was a nightmare. Every MD appt, testing..... etc has been
really bad. How do I make a 5 yr old understand all of this? This is
frustrating, tiring, upsetting, and stressful. He has had 3 surgeries
this year and hates every minute of it. He hates the doctors, nurses,
therapist and me.
> Please Help
> Yvette
>
> ---------------------------------
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>
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>
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>
> ---------------------------------
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>
> [Non-text portions of this message have been removed]
>
im a25 yr old young lady that had sb all her life at firs my parent
did not know how to deal with the problem but they put them self in
gods hand and told him she is ur child u gave her to us but we need
you help with her please help us every moment of her life and when
she was starding to walk the doctors told her grandmother that i was
no going to walk and my grandmother had faith in god and thank to god
i walk i just whan to tell all the parents it not your falt that ur
babys have sb it life






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