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spinabifidacentral · Spina Bifida Central -A Place To Find Support And Share Experiences
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Reply | Forward Message #2771 of 8096 |
New member

Hello to all. I am the mother of a 4 year old boy, Joshua. Right now
we are getting ready for deflux surgery in January and going from AFO's
to KAFO's, because Josh is walking on his own now and needs more
stability.
One thing I am very curious about is whether any of you experience the
same thing as we are now. Joshua asks the same questions over and over
again, knowing the answers, and it is quite concerning. I know of
cocktail chatter and have read up on other speech concerns so I'm just
curious as to what your experiences have been and is there some type of
intervention.
Thanks,
Joan, mom to Joshua, L4 L5, hydro, chiari, KAFO's, walker and mobile
stander.




Fri Dec 1, 2006 2:39 pm

denovo04
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Message #2771 of 8096 |
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Hi, im new to this group so i just wanted to say hello to all the members. Joanie ... Do you Yahoo!? Find out what made the Top Yahoo! Searches of 2003 ...
Joan Elliott
joanhay2000
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Jan 3, 2004
12:26 pm

Hi, my name is Cindy and I am the mother of a 22 year old son with spina bifida. I am looking for advice from young adults with sb. My son was a fairly...
lucas2431
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Jun 29, 2004
11:34 am

Hi my name is Trisha. I live in Washington with my husband and two children Kaleb and Lydia. Kaleb was born in August 1999 with spina bifida. Kaleb was a low s...
trishamyrtle
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Jul 14, 2004
9:56 pm

Hello Trisha, Nice to have u join the group. As for your question on the uro dynamis testing . My daughter who is 16 with sb just went through it and what they...
teeanna1989
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Jul 15, 2004
1:19 am

I just joined today and would like to say HI to all the members. I am a 32 year old male in the midwest and i have spina bifida I do have some movement below...
squad1capt2003
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Feb 13, 2005
8:40 pm

Hi I am a new member of this group. Thank you for letting join. I am open to any and all instant messages. My yahoo instant massage ID is htwhls1996. If anyone...
casey
htwhls1996
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Mar 7, 2006
2:41 pm

Hello, Casey and WELCOME! I am Pastor Mindy. I am 34 yrs. old and I have SB. I am a Married Ordained Minister. My Ministry is called, "Miracle Ministries" ...
Pastor Mindy,D.M.
angelwarrior...
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Mar 10, 2006
12:19 am

Hi Casey and Welcome to the group!! I am Jamie and I am expecting a little girl who will have SB....
Jamie
armybrat411mp
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Mar 10, 2006
3:26 am

Hello to all. I am the mother of a 4 year old boy, Joshua. Right now we are getting ready for deflux surgery in January and going from AFO's to KAFO's,...
denovo04
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Dec 1, 2006
2:57 pm
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