--- In spinabifidacentral@yahoogroups.com, john dvorak
<anton19542001@...> wrote:
>
> Devastated? OH MY GOSH! Don't let them be devastated! A spina
bifida child is as WONDERFULLY MADE as a "NORMAL" child. Their child
will be so special in every single way, it is hard to fathom the
fantastic gift they will behold every single day of the child's life.
it would be such a horrible waste to destroy something so God given
as a child no matter what. I hope you can persuade this couple to
keep their special child. Please talk to them! Very important! We
must not snuff out a life just because we think they are 'below
par".........the child is going to be a true gift and would be so
horrible to just give up before he or she is even in this
world........God bless you and the family that is making this
wonderful decision to KEEP the baby. I'm praying for all of the family
> John in Michigan
>
>
> ----- Original Message ----
> From: silverleaf003 <silverleaf003@...>
> To: spinabifidacentral@yahoogroups.com
> Sent: Monday, June 5, 2006 11:48:01 AM
> Subject: [Spina Bifida Central] New and need help
>
> Hi, I am looking for any help ,opions,and
experience any one can
> offer. My son and his fiancee found out on Thursday they are carying a
> baby with Spina Bifida. They and our family are devastated, and are
> trying to make the best choice for their baby. The doctors are
> recomending terminating the pregnancy and they only have till Wed. to
> decide as she is in her 20 th week. Please share any info you can
> about the quality of life for this child. Thank you, Lisa
>
>
>
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>
>
> [Non-text portions of this message have been removed]
>
I can undersatnd the feelings that they are going through. My daughter
has spins bifida. She is a bright, smart, beautiful little girl. Most
days are easier than others, but I still have a day when I feel sad
for everything thst my daughter will miss out on. Then I take her to
the SB clinic or some place like that, and I look around the room. As
parents of special kids, we need to feel honored that we were chosen
for their parents. My aunt told me, "God picks special people to be
parents of special kids,"