In response to silverleaf003; I have a beautiful
little girl who has spina bifida. She is 4 yrs old,
and turns 5 in November. She is smart, bright, funny,
and she has the sweetest disposition. She goes to
school. I could write on here forever about my little
girl, but my point is this; I found out when I was
approx. 16 weeks along. I was offered termination, but
i kinda just laughed at the lady. My husband and I
were offered an alternative. It's a procedure that is
still considered experimental. Intro-uterine Repair of
Spina Bifida at Vanderbuilt University in Nashville
TN.Please visit the site
http://www.greaterthings.com/News/hand.htm-This will
explain some of it, I hope. Please feel free to
contact me if you have any questions...

--- john dvorak <anton19542001@...> wrote:

> WOW Glad to see this group is still active! I
> thought it had quit long ago! Good to see you back
> guys!
>
>
> ----- Original Message ----
> From: LYNN <teeanna1989@...>
> To: spinabifidacentral@yahoogroups.com
> Sent: Tuesday, June 6, 2006 5:53:25 AM
> Subject: [Spina Bifida Central] Re: New and need
> help
>
> Hello ,
> I am sorry you are so devistated by your family
> being in a baby with
> spina bifida,
> I am a mom to a lovely 18 year old daughter with
> spina bifida , i
> would have never traded her in for anything or
> anyone one the
> world.Sure there is alot of care when they are
> little and it all
> depends on how there spina bifida affects there
> because there are so
> many differnt leaves of spina bifia , But most baby
> with spina
> bifida and with the doctors and all the technology
> they have theses
> days are making wonderful marks on this work.I will
> no lie to you it
> is rough road , wiht all the doctors and specailist
> you have to meet
> and some times the amout of surgrys this children
> go through and the
> heart break you feel for your child when they go
> through some of the
> things in the world.But they are wonderful children
> just like any
> other normnal child .They bring love and joy into
> your world.
> If you would like to tlak you can e-mail me at
> teeanan1989@ yahoo.com. or you can also im me at
> teeanna1989. If you
> have any question and i will try and aswer then the
> best i can and i
> wish you and your family the best in the world with
> you dection on
> this new baby.
> Lynn-- In
> spinabifidacentral@ yahoogroups. com,
> "silverleaf003"
> <silverleaf003@ ...> wrote:
> >
> > Hi, I am looking for any help ,opions,and
> experience any one can
> > offer. My son and his fiancee found out on
> Thursday they are
> carying a
> > baby with Spina Bifida. They and our family are
> devastated, and
> are
> > trying to make the best choice for their baby.
> The doctors are
> > recomending terminating the pregnancy and they
> only have till Wed.
> to
> > decide as she is in her 20 th week. Please share
> any info you can
> > about the quality of life for this child. Thank
> you, Lisa
> >
>
>
>
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