I'd like to also add something to this impending (I HOPE NOT)
tragedy.......nobody ever knows the accomplishments that a child with
spina bifida can work out for himself/herself, or with help from
others. It would be horrible to snuff out a life and not give them a
chance at fullfilling God's promise. Please encourage your son and
daughter in law to KEEP the baby and to give them the chance to be the
light of their lives.
sincerely
John Dvorak
silverleaf003 wrote:
> Hi, I am looking for any help ,opions,and experience any one can
> offer. My son and his fiancee found out on Thursday they are carying a
> baby with Spina Bifida. They and our family are devastated, and are
> trying to make the best choice for their baby. The doctors are
> recomending terminating the pregnancy and they only have till Wed. to
> decide as she is in her 20 th week. Please share any info you can
> about the quality of life for this child. Thank you, Lisa
>
>
I'd like to also add something to this impending (I HOPE NOT) tragedy.......nobody ever knows the accomplishments that a child with spina bifida can work out...
Hi, I hope this repply is not to late. I have 3 years old daughter that have spinabifida, I think your son just experience something very similar to me, even...
I have 2 adopted daughters with SB and am trying to adopt another one now. My girls are both paralyzed from the top of the legs down but have no difference in...
Hi,I have a 20 year old grandson born with spina bifida,he has never walked,never run,but he has and still is a joy to my heart.His name is William,he has had...
The doctors can tell you that a child is going to have Spina Bifida, but not to what extent. When I was born 38 years ago, my parents were told I would...
Others have explain about a lot about having spinabifida family is fine, so I won't add more story there, for me there is one more aspect that stress me a lot,...
Lisa, I am a grandmother to Makenna Rose w/SB...www.MakennaRose.org , her pictures after birth speak more than words. Makenna or as I like to call her, Rosebud...
Marsha not sure, I love your story, but I think you meant to send it to silverleaf.. but I will check your granddaughter out and I know know exactly what you...
The doctors at UCSF were able to tell us where the lesion was located and even before birth the outcome...which has been pretty accurate. We love the doctors....
Well, the doctors told my husband & I the same thing about 4 years ago. Today, Logan is a healthy (almost) 4 year old! Nobody even knows he was born with...
Erma Bombeck says it best with a poem about how God picks Mom's for disabled children..... THESE MOMS SHARE SPECIAL GIFTS by Erma Bombeck (published...
National Institute of Neurological Disorders and Stroke Doctors have recently begun performing fetal surgery for treatment of myelomeningocele. Fetal...
hey Ashley! Thanks for that AWESOME info! Has anyone heard of a boy named Sam Aramas? I got pictures e-mailed to me from someone ( I dont remember who) of him...
www.MichaelClancy.com Michael Clancy the photojournalist who took the picture of Samual during in-utero surgery. The photo shown on the cover of Life...
I had forgotten that I was registered with this group. LOL Now it's bogging down my email! LOL I don't have sb myself but am a parent of a son with sb. I want...
Also, if you live near Philadelphia, PA, there's a wonderful place you can go to see if your son's fiancee is a candidate for the inutero surgery to correct...
I just wanted to add to this post that you cannot reverse spina bifida. It is a neural tube defect. I've read much information about this procedure and it is...
Actually the healthiest I have ever been was when I was pregnant. The nine months flew bye. My oldest Cyerra was born natural. And my littlest Madison was...
My step daughter was born with spina bifada and they said the same thing. She is 10, in the 4th grade, walks with braces and enjoys most but not all the same...
... a ... Hi all.... I haven't posted on here in a while but sometimes something catches your eye and you feel the need to respond...I am 30 years old and I ...
to Silverleaf............. the bottom line is, DONT LISTEN TO DOCTORS when it comes to SB! They THINK they know, but they DONT KNOW. There is so much that can...
... carying ... are ... Wed. to ... there ... dr's ... I ... real ... fortunate ... of ... would ... person ... a ... the ... April ... I ... seem ... alone! ...
Good Morning, I am just catching up on email and I would like to offer my experience...i'm 35 now with SB...In 1971 (when I was born), where I live, very...
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