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Reply | Forward Message #1821 of 8076 |
Re: New and need help

My daughter is 17 with SB, and I can honestly say now that her birth
was a blessing. Had we known about the SB prior to her birth, we
probably would have aborted-- what a mistake that would have been!

Disabled kids are a true gift, and it will only make all of you
stronger, better people. My daughter is bright, pretty, outgoing,
walks, ice skates, plays golf, and just enjoys life. (When she was
born, the neurosurgeon told us "she will never walk, she'll be
wheelchair bound, and you should consider putting her up for
adoption". Thank God we didn't listen!

Check out this great website, which gives you insight into raising a
disabled child.....
http://www.nas.com/downsyn/holland.html






Wed Jun 7, 2006 3:17 am

bfit516
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Message #1821 of 8076 |
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_http://www.geocities.com/Heartland/2085/Hevenchld.html_ (http://www.geocities.com/Heartland/2085/Hevenchld.html) Heaven's Very Special Child I am a 41...
jenjay@...
wheelin_mom
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Jun 7, 2006
4:43 pm

My daughter is 17 with SB, and I can honestly say now that her birth was a blessing. Had we known about the SB prior to her birth, we probably would have...
bfit516
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Jun 7, 2006
3:17 am

My parents were told the same thing about me. (That I would never walk.) Well, 38 years later, I do walk unaided. I hold a full-time job and pretty much live...
Switchbrdopr@...
caspersmom20112
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Jun 7, 2006
12:38 pm

Devastated? OH MY GOSH! Don't let them be devastated! A spina bifida child is as WONDERFULLY MADE as a "NORMAL" child. Their child will be so special in...
john dvorak
anton19542001
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Jun 7, 2006
11:14 am

... bifida child is as WONDERFULLY MADE as a "NORMAL" child. Their child will be so special in every single way, it is hard to fathom the fantastic gift they...
Christy
eldridge99
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Jun 7, 2006
12:35 pm

I like that! That's awesome. i"m not a parent, if you saw me live my life i think it would be apparent that i'm not a parent, but I do think that I am a...
anton19542001
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Jun 7, 2006
1:04 pm

Our daughter is 7 now, and she needs splints to walk, uses a wheelchair to go distances and is incontinent, but we would not be without her for the world. Yes...
rosiesmumuk
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Jun 7, 2006
1:20 pm

here is a totally wonderful page i hope you all visit, about the aspects of spina bifida and how it can positively change your life in such wonderful ways that...
anton19542001
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Jun 7, 2006
1:54 pm

Just out of courosity why would they want to terminate the pregancy. My son is Five years old with Spina bifida and he play t-ball, and rides horses for fun....
Lisa Kay Edmison
momofdevin
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Jun 7, 2006
12:54 pm

I don't think it's up to anyone to convince this couple not to abort their child. I'm 22 years old and have sb. I think it's a very personal choice. I wouldn't...
cari
carester2002
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Jun 7, 2006
7:47 pm

just a personal note from me: I have been seeing someone for several years that has SB. we have talked about having kids. Medical science CAN now days go in...
Robert Sharp
rsharp6957
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Jun 7, 2006
7:58 pm

... not abort yes we have had some very rough times and long very long hspital stays but man if i am haveing a bad day at work i can d the strength she has...
troy
firemantroy3...
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Jun 7, 2006
8:54 pm

Please don't have the pregnancy terminated. I was born with spina bifida myself and have had problems, yes, but I'm still here at 42 years old. Brenda john...
Brenda Wynn
brenda_wynn2002
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Jun 7, 2006
1:11 pm

I too would like to responsd to the doctor's suggestions to terminate a pregnancy. FIrst of the question has to be asked "what is normal" because if you look...
vevankova
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Jun 7, 2006
2:01 pm

I totally agree with this. Despite my disability, I've been able to accomplish so much in my life. I'm even working now and that was something I didn't think...
Brenda Wynn
brenda_wynn2002
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Jun 7, 2006
2:17 pm

I hope I'm not too late with my response since it's Wednesday already. Oh goodness, do I ever understand these feelings! It was just about a year ago that we...
dawn
djhub44
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Jun 7, 2006
3:59 pm

I would have been eternally pissed at my parents if THEY decided to terminate their pregnancy! ;) In all honesty I can imagine how this news could bring down a...
Mark Hodge
nospecifichigh
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Jun 7, 2006
4:43 pm

OH MY LANTA! This takes me back YEARS!! I was born with Spina Bifida 28 years ago and my parents were told to put me in a group home and try again for a ...
leanne conzemius
leanneconz
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Jun 7, 2006
9:18 pm

I had to write this. You go girl! I can't believe doctors would say that. I agree with you too about people not seeing past the crooked walk or even the...
Brenda Wynn
brenda_wynn2002
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Jun 7, 2006
9:31 pm

Ok, so I DID give my personal info in the last e-mail! Oh well! If ANYONE in here wants to chat, you know, dish about how DUMB some doctors are (a burdon- oh...
leanne conzemius
leanneconz
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Jun 7, 2006
9:52 pm

I too have a nineteen year old son who was born with spina bifida. Thankfully i wasn't aware of this until he was born so was never asked if i wanted a...
michelle groves
malibuxxlil
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Jun 8, 2006
6:25 am

when I was born back in Nov of 1954, I was born in a naval hospital up at Great Lakes IL. and that doctor patched up my already infected meningocele and sent...
anton19542001
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Jun 7, 2006
11:03 pm

When my son was in the hospital undergoing spinal fusions, we met a man there in his 50's that also had sb. The doctor that delivered him wanted to take him...
Ashley Kersh-Fletcher
swenknet
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Jun 7, 2006
11:41 pm

Wonderfully put. Nice to meet you and all the others this morning. Glad to see this board hopping. It's one thing to hear from parents, but so much better...
dawn
djhub44
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Jun 7, 2006
4:19 pm

In a message dated 6/7/2006 7:41:32 A.M. Eastern Daylight Time, anton19542001@... writes: Please encourage your son and daughter in law to KEEP the baby...
jenjay@...
wheelin_mom
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Jun 7, 2006
5:05 pm

tyvm. i appreciate all the kind thoughts. now send all healing thoughts to the new prospective parents that they may make the correct decision. i'm off for a...
anton19542001
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Jun 7, 2006
5:39 pm

Lisa: Could you please let us know what decision they made? [Non-text portions of this message have been removed]...
jenjay@...
wheelin_mom
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Jun 11, 2006
2:18 pm

I'd like to also add something to this impending (I HOPE NOT) tragedy.......nobody ever knows the accomplishments that a child with spina bifida can work out...
anton19542001
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Jun 7, 2006
11:40 am

Hi, I hope this repply is not to late. I have 3 years old daughter that have spinabifida, I think your son just experience something very similar to me, even...
edy yusman
zinhua
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Jun 7, 2006
11:48 am

I have 2 adopted daughters with SB and am trying to adopt another one now. My girls are both paralyzed from the top of the legs down but have no difference in...
Cindy Hawk
mom2sbdaughters
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Jun 7, 2006
12:29 pm
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