Hello ,
I am sorry you are so devistated by your family being in a baby with
spina bifida,
I am a mom to a lovely 18 year old daughter with spina bifida , i
would have never traded her in for anything or anyone one the
world.Sure there is alot of care when they are little and it all
depends on how there spina bifida affects there because there are so
many differnt leaves of spina bifia , But most baby with spina
bifida and with the doctors and all the technology they have theses
days are making wonderful marks on this work.I will no lie to you it
is rough road , wiht all the doctors and specailist you have to meet
and some times the amout of surgrys this children go through and the
heart break you feel for your child when they go through some of the
things in the world.But they are wonderful children just like any
other normnal child .They bring love and joy into your world.
If you would like to tlak you can e-mail me at
teeanan1989@.... or you can also im me at teeanna1989.If you
have any question and i will try and aswer then the best i can and i
wish you and your family the best in the world with you dection on
this new baby.
Lynn-- In
spinabifidacentral@yahoogroups.com, "silverleaf003"
<silverleaf003@...> wrote:
>
> Hi, I am looking for any help ,opions,and experience any one can
> offer. My son and his fiancee found out on Thursday they are
carying a
> baby with Spina Bifida. They and our family are devastated, and
are
> trying to make the best choice for their baby. The doctors are
> recomending terminating the pregnancy and they only have till Wed.
to
> decide as she is in her 20 th week. Please share any info you can
> about the quality of life for this child. Thank you, Lisa
>