Hello, there!
My name is Mindy (or Pastor Mindy, whichever you prefer) I have SB
as well...I don't really know much about HKAFOs or anything ike
that, as I walk on my own. What I CAN tell you is that his age is
not too young to start all this. I was the same age when I got up
and walked across the room...(shocking my poor Mother half to death!)
I wish you good luck in all this and I will keep you and your little
one in my prayers.
God Bless,
Pastor Mindy

> Hi! I am the mother of a 14 month old with L3 SB named Theo. Theo
is in
> HKAFOs. He is able to stand and hold onto a walker. The SB
clinic has
> recommended keeping his hips and knees locked while we attempt to
teach
> him to walk. His hips are easily dislocated, but his HKAFOs seem
to nicely
> support him. Theo likes being upright and enjoys us kind of
pushing him
> forward with the walker in front of him. He does have strong
quads and is
> able to pull himself to his knees without his brace on. Although
I have seen
> him crawl on his knees, he prefers to combat crawl. The issue
with walking
> seems to be initiating forward movement. How do you do this with
his hips
> and knees locked? Any comments on getting a child up and walking
with
> HKAFOs would be appreciated. Theo is a big baby . . . over 30
pounds. His
> large size isn't exactly a help . . . but with a 6'6" father,
large genes are part of
> his make-up. We know that he is very young to be attempting this,
but we are
> trying to parallel typical development as much as possible.
>
> Jean
>