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spinabifidacentral · Spina Bifida Central -A Place To Find Support And Share Experiences
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PAIN   Message List  
Reply | Forward Message #1613 of 8093 |
Re: PAIN

My husband is 40 and was having severe pain and spasms. He eventually
ended up at Gillette Children's in Minnesota having a cord detethering
surgery done by Dr. Michael Partington. He is the best in the country
and he has done great things for our family. My husband and 2 of our
children have SB. So as you can image a good Neurosurgeon is very
important to us. We did lots of research and he is the best. Even the
Mayo Clinic would not help us and Dr. Partington did. My husband is
now off all pain meds and almost off the antispasm meds. ~Barb

--- In spinabifidacentral@yahoogroups.com, "angelwarriorprincess7"
<angelwarriorprincess7@y...> wrote:
>
> I have a question...
> I am 34 years old and I have Spina Bifida. I also have PAIN!!!
> I never used to...
> I don't know if it's age related or from my messed up surgery in 1999.
> Do any of you who have SB and are near my age have pain? Back pain,
> neck pain, leg pain, etc...
> I joke and say that the pain lets me know I'm still alive, but
> truthfully, it getting on my nerves! Know what I mean?
> ALSO, I take lexapro for depression, and I am ALWAYS tired!!!-
> Does anyone know of something else that works as good as lexapro, BUT
> does NOT make you TIRED ALL THE TIME!?!? ( I mean, I could sleep an
> entire day away! No kidding!...Yeah, your definately not depressed on
> lexapro, you're too busy sleeping! :)!)
> Thanks for any and all input/help!
>







Fri Nov 11, 2005 10:33 pm

bugladdie
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Message #1613 of 8093 |
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I have a question... I am 34 years old and I have Spina Bifida. I also have PAIN!!! I never used to... I don't know if it's age related or from my messed up...
angelwarriorprincess7
angelwarrior...
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Nov 7, 2005
11:27 pm

Sounds like you have a teathered cord. See a neurosurgeon and get an MRI....
mom2sbdaughters
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Nov 8, 2005
3:11 am

Well, thank you for the input... Problem is...unless it's REALLY bad, doctors won't touch me!!! (After having the one surgery messed up in 1999, it was for...
angelwarriorprincess7
angelwarrior...
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Nov 8, 2005
9:03 am

By any chance did you have your surgery done at Children's Hospital in Detroit? I was glad the state made her give up her license to practice and we don't...
mom2sbdaughters
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Nov 9, 2005
12:37 am

... OH MY GOSH!!!! How did you know that????? YES!!! I DID have my surgery done there!!! THE STATE MADE HER GIVE UP HER LICENSE??? WOW!!! Her office had been...
angelwarriorprincess7
angelwarrior...
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Nov 9, 2005
12:15 pm

My husband is 40 and was having severe pain and spasms. He eventually ended up at Gillette Children's in Minnesota having a cord detethering surgery done by...
Bug
bugladdie
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Nov 11, 2005
10:34 pm
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