Hi Sara!
Congradulations on the birth of your son. I have a son, Jacob who is
5 mos. old. He did have an open cyst on his back and had to have
surgery when he was just a day old. I can tell you, depending on
the size of the wound after surgery, the hardest part may be keeping
it clean. Jacob's incision was very low, it took several attempts
to dress it before we found away to keep,"poo" out of it. Have you
started to research spina bifida yet? It can be very scary, so far
Jacob is has normal as can be but, there are alot of problems that
can arise from having spina bifida. We are waiting until he is older
before we worry about it too much but he goes to a special clinic
every few months and is evaluated by nuerosurgeons, urologist and
orthorpedic surgeons. So far they have nothing to suggest as far as
problems or needed surgeries. Good luck and feel free to email me!

--- In spinabifidacentral@yahoogroups.com, "rbbsgrl1999"
<sabyrd76@m...> wrote:
> Hi to all.
> My name is Sara and I have a boy just over 2 months old who was
born
> with Spina Bifida. The doctors say it is a rare and minor case. He
has
> a (Closed) Cyst on his lower back, just above his little bottom.
They
> say the lower the better, well, it is all the way down, thank
> goodness. The doctor is going to do surgery when he is older
(they
> said because it wasn't leaking?? that they wanted to wait). I am
not
> at all educated with Spina Bifida except that i know it is when
your
> spine isn't grown right or completely.... if I'm wrong please
excuse
> me and let me know. I would appreciate some info and advice
anyone
> has to offer. I'm a new mom and this just made things a little
more
> challenging. I've made up bubble wrapped (pallets) for him to lay
on
> in a carseat, carrier and his stroller, the bathtub and just to
lay on
> his back. The diaper is the trickest.. Because the Cyst is right
> there at his waistline. Well, I just wanted to introduce myself
and
> see who else is out there. Please respond with any advice or info
you
> have. Thanks, Sara