Just wanted to intoduce my self, I have a 5 mos. old son, J. with
spina bifida, his lesion is L5-S1. He was born on Christmas eve (of
all days!)and had his first surgery on Christmas day and his shunt
put
in on New Years Eve. Three weeks after his shunt was put in it
starting "leaking". Fluid was dripping from the stiches on his head.
We took him to the emergency room but ironically the "leaking" had
stopped by the time we got there. They ran some test and sent us
home
with instruction to come back if it happened again. Well it did, the
next day, so we took him back again but by the time we got there it
stopped, again. They admitted us for observation but it never
happened
again at the hospital. The doctors didn't seem to concerned, in fact
I
felt like they thought I was crazy! Anyway, it happened a few more
times and then stopped, about two weeks after this incident.
Then about two days ago, I noticed fluid coming out of is head again.
Has any one else had this happen? The doctors seem to think it
is "weird".
The only way to know for sure whether he has spina bifida would be to have an x-ray or MRI of the spine-- an MRI would be more definitive. Best of luck with...
Just wanted to intoduce my self, I have a 5 mos. old son, J. with spina bifida, his lesion is L5-S1. He was born on Christmas eve (of all days!)and had his...
Hi-- I just read your post where you said your son's scar was leaking, and I was just wondering how he's doing? If this happens again, I would HIGHLY suggest...
I would like to say hello to all the new Members . Hope you find what you are looking for in this sight we have a bunch of wonderful people here.If you have a...
Hello I am a mom to a 18 year old with sb. Does anyone have a problem with there teen and not wanting to cath when it is there time?If so what do you do to get...
I would like to welcome all the new members , I hope everyone is doing well as the New Year has started. I am mom to a 18 year old daughter with sb .If anyone...
I would like to say Hello to all the New mebers to this group and hope they will enjoy the group and if you have any questions you can post .People are very...
... hope ... of ... hello,would like know a little bit about an urody? we have got to have one next mth,and i know he's not going to like it.he's only 2{3 in...
I am a mom to a 18 year old daughter , and i do not feel it is all that bad pushing your special needs child.The doctors told me when my daughter was 2 years...
hi r u still on? teeanna1989 <teeanna1989@...> wrote: I am a mom to a 18 year old daughter , and i do not feel it is all that bad pushing your special...
Hi and welcome to the group, Here are some questions, Does you child kick her feet and legs? Does she seem to urniate very well on her own? Does she has any...
Hi Lisa, Yes my daughter Sarah has no problems in kicking her legs and feet. She kicks and moves like a normal baby would. I have been told by the nurelogist...
Hi Cristina, Our cases are sounding much of the same. Kameron was born with Syrinx. His 1st surgery MD repaired the spine then tried to remove the fatty tissue...
Hi Yvette, Your the first person that I have spoken to that is affected by a syrinx. I'll be honest, I don't know a lot about syrinx, so if you could give me...
Hi, I was always told that no 2 babies born with SB are exactly the same. Everyone is unique. My lesion is at L4/L5 which is at the base of the spine. Can I...
<<Hi, I was always told that no 2 babies born with SB are exactly the same.>> Very true, Melissa. My friends with SB are all at different levels and have ...
Jared if you are refering to me about the e-mail, I don't remember. Can you please send it again just to be sureI've been getting alot of e- mails of late and...
my daughter victoria is 4 she has no feeling in one leg from the hip down and she wears braces on both legs and walks. if your baby is moving their legs on...
Hi Cristina, It sounds from what you are saying that your daughter will walk, maybe not as soon as she would without SB but with everything you are saying, I...
Hi Lisa, If you don't mind me asking when your son was 4 months, what happened, that made you realise that your son had a bladder problem and that you had to...
Sorry for replying so late, I have been on vacation. We started cathing Devin when the urologist did a pressure test and it was high. To be honest I think if...
hello welcome to the group. this groups is supportive and friendly. My name is jackie I am 27 years old. I have spinia bifida and hydro cephlus. My spini...
Jackie
jpentland1@...
Jun 30, 2007 12:41 pm
Hello, Nice to meet you, thank you very much. ... ____________________________________________________________________________________ Luggage? GPS? Comic...
I totally agree if it had not been for my mom pushing me and treating me as any of her other children I shudder to think what I would be like today. ...
I am a mom to a 19 year old daughter , lately she has had some problems with sore on her feet , it started out as a scratch about a month ago and has turned...
... a ... had ... up? ... of ... let ... have ... clean , ... me ... Lynn, My daughter is 10 and she got a sore from crawling on the cement. We started out...
Thank you for all the information on the healing of kids with sb and there sore sincerly, Lynn--- In ... about ... healed ... dry ... or ... and ... give ... ...
if she's not walking its probably due to poor circulation I know that I have had this problem off and on over the years of my life. in my case they are due to...