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--- In specialhearts@yahoogroups.com, tinesangel wrote:
>
> My 5 yr. old daughter was born with a congenital
> heart defect called Truncus Arteriosus. She has had one
> open heart surgery thus far at the age of 1 month.
> There will be several more in her life time. Looking
> forward to meeting and chatting with you all. My email is
> tinesangel@...<br>~Christine~
>
  Hi,

I'm from the Philippines and my wife just gave birth to a babay girl
diagnosed with truncus arteriosus. I would be very interested on the
condition of your daughter after these years? Appreciate your reply.
Thanks.

Jed

--- In specialhearts@yahoogroups.com, rochie_smiley <no_reply@...>
wrote:
>
> Hello, I just recently gave birth to a baby boy with Pulmonary
Valve
> Atresia with Intact Vetricular Septum (PVAIVS). I am located in
> Manila, Philippines. I hope I can communicate with someone from
> Philippines, too who has a special someone (child, relative, etc)
with
> the same case. Please, please e-mail me.
>

Hi,

I'm from Pasig, Philippines and have read your post. My wife gave
birth last September to a baby girl diagnosed with truncus
arteriosus. A much rarer congenital heart condition. But we are
hanging on God's grace. It may be different to that of PVAIVS but I
think both are congenital in nature. Right now, we are seeking
treatment at the Philippine Heart Center. There is an absence of any
Congenital Heart Disease (CHD) support group here in the Philippines,
(or I might be wrong). I welcome connecting with someone who could
relate somewhat to what we are going through. I can be reached at
09178990712.

Hanging on,

Jed

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Hello, I just recently gave birth to a baby boy with Pulmonary Valve
Atresia with Intact Vetricular Septum (PVAIVS). I am located in
Manila, Philippines. I hope I can communicate with someone from
Philippines, too who has a special someone (child, relative, etc) with
the same case. Please, please e-mail me.

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