hi janet, my name is lesley and i have a fourteen year old son with congenital heart defects his conditon is tricuspid atresia, ive lost count know of the...
Janet, where are you located? I may have a local support group registered in your area or other heart parents who do want to talk to another heart parent. ...
I am a mother of a 3 year old beautiful little girl, she was born with pulmonary stenosis and anamolous pulmonary venous return, she has had a cath lab...
Hi SharRee. Welcome to the group. Not much mail gets generated here (small group I think). I can't really relate to you or your husband's problems, except the...
Hi, My name is SharRee. I have a husband who has Progressive Heart Disease and Pulmonary Vascular Disease in his legs and he smokes. I have no control over his...
Hi Cindy. Thank you for the hope. My name is Wendy. Kyle was born 2/10/04. He is my Angel. I was blessed by not finding out he has partial AVCD until 4/27/04....
Hi, my names Cindy, mother to molly 4-28-99, she was born with asd, vsd, avc, atrioventricular heart defect, and hypoplastic left heart syndrome, which all...
My son, Kyle, was born 2/10/04 & was just recently diagnosed as having partial atrioventricular canal defect. Cardiologist says he will need to have surgery...
Hi, I am new to this group. Might be good to chat with other young people that have a congentital heart condition. I am 25 years old I have a congenital heart...
Hi Everyone. I just got an email from someone who wanted my HLHS Handbooks to put in gift baskets for parents on CHD Day. I thought I would post about the...
My daughter is 4 months old and was dianoised with HLHS when she was 3 days old. She is currently in the hospital recovering from her second surgery, the...
I am a new member and would like to intorduce myself.... My name is Kristin and I am a mom of a Heart baby... My daughter Kaitlynn was born with VSD , Severe ...
Libby, <br>We will be happy to let you vent to us..Brian, special hearts, and I have been through 6 open heart surgeries and numerous caths...We will also try ...
Hey Christine...my name is Stephanie and I am married to special hearts, Brian. We apoligize for the time it has taken us to reply to your messages but we had...
Well I actually had the baby...I did not realize that Brian had logged in under me....special hearts and I are married and have 3 little girls..so may be you...
Hey. i am sorry to hear about your son...Brian and I decided to make this club to help people who were going through life with heart problems or for the family...
Sorry it has taken so long for us to reply to your messages...We have been really busy lately...My wife had a baby on January 1, and then my sister in law had...
HELLO EVERYONE MY NAME IS AMY . I HAVE A SON THAT WAS DIAGNOSED WITH TETROLOGY OF FALLOT THE DAY AFTER HE WAS BORN . HE HAS ALREADY HAD ONE OPEN HEART SURGERY...
I know a club that is perfect for every heart defect but let me find it. sorry. i forgot to join it under this s.n. but yah i will post it like real soon i...
Hi All,<br>My five year old son was diagnosed with supraventricular tachycardia. On a recent Holter monitor there was evidence of three episodes in a day with...
My 5 yr. old daughter was born with a congenital heart defect called Truncus Arteriosus. She has had one open heart surgery thus far at the age of 1 month. ...
hey I am a fourteen year old female and i was born with TOF and underwent open heart surgery at 14 months old to patch a hole in my heart and last time i went...
Anyone who would like to chat with myself or my wife we are almost always on line. huffman3shoney1 is my wife and is on ICQ.We also both have EMail accounts...
I would just like to Thank everyone who takes the time to visit my club site. I would like anyone who would like to join to please feel free to. I am just ...
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