I am a new member and would like to intorduce myself.... My name is Kristin and I am a mom of a Heart baby... My daughter Kaitlynn was born with VSD , Severe ...
My daughter is 4 months old and was dianoised with HLHS when she was 3 days old. She is currently in the hospital recovering from her second surgery, the...
Hi Everyone. I just got an email from someone who wanted my HLHS Handbooks to put in gift baskets for parents on CHD Day. I thought I would post about the...
Hi, I am new to this group. Might be good to chat with other young people that have a congentital heart condition. I am 25 years old I have a congenital heart...
My son, Kyle, was born 2/10/04 & was just recently diagnosed as having partial atrioventricular canal defect. Cardiologist says he will need to have surgery...
Hi, my names Cindy, mother to molly 4-28-99, she was born with asd, vsd, avc, atrioventricular heart defect, and hypoplastic left heart syndrome, which all...
Hi Cindy. Thank you for the hope. My name is Wendy. Kyle was born 2/10/04. He is my Angel. I was blessed by not finding out he has partial AVCD until 4/27/04....
Hi, My name is SharRee. I have a husband who has Progressive Heart Disease and Pulmonary Vascular Disease in his legs and he smokes. I have no control over his...
Hi SharRee. Welcome to the group. Not much mail gets generated here (small group I think). I can't really relate to you or your husband's problems, except the...
I am a mother of a 3 year old beautiful little girl, she was born with pulmonary stenosis and anamolous pulmonary venous return, she has had a cath lab...
Janet, where are you located? I may have a local support group registered in your area or other heart parents who do want to talk to another heart parent. ...
hi janet, my name is lesley and i have a fourteen year old son with congenital heart defects his conditon is tricuspid atresia, ive lost count know of the...
hi janet, my name is lesley and i have a fourteen year old son with congenital heart defects his conditon is tricuspid atresia, ive lost count know of the...
Hi. i am Wendy. My 9 month old, Kyle, just had surgery & so we are 9hopefully) thru the bad times. His CHD is pretty mild compared to some out there. But I am...
Dear Michelle, I am located in Sussex County N.J. if there is a local support group that would be great. Please contact me and let me know. Sincerely, Janet ...
Hey Janet, my names Cindy, mom to Molly (and her twin bro wayne, and big sis hayley). U name it, mo's got it, when people ask what her defect is, i tell them...
Check it out .... New CHD Awareness Magnets!! These are awesome and in two different styles. The first style comes in a rectangle shape ... great if it is...
Just a reminder ... CHD Awareness Magnets are on sale now! We are taking pre-orders currently and they are selling fast!! There are 2 different CHD Magnets,...
I am new here so I thought I would introduce myself. My name is Kathy and I wasborn with Tricuspid Atresia, ASD, VSD in 1971. I have had several surgeries with...
Hi all, Just wonder who you all use for web pages for your kids. I am looking at making one for me (so you can all see my fat face) and for my three year old...
Ok I thought I better at least post how my appointment went yesterday befoer I start getting yelled at. Afew things first. I am still working on the fontan...
Here is the addy to my web site. It is still under major construction. Anyone interested putting my addy on there sites feel free. I would be happy to put any...
Hi all, I have been very busy working on my web site today. There si still alot I want to do but if you get a chance to take a look I would appreciate any ...
HI all, If you get a chance in the next day or so please take a look at my web site. I have been really working hard on it and done alot. there is still a lot...
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