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specialhearts · Special Hearts - A place to talk about cogenital heart defects
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Reply | Forward Message #9 of 333 |
HELLO IM NEW HERE ! ! ! HELP!!!!!

HELLO EVERYONE MY NAME IS AMY . I HAVE A SON THAT
WAS DIAGNOSED WITH TETROLOGY OF FALLOT THE DAY AFTER
HE WAS BORN . HE HAS ALREADY HAD ONE OPEN HEART
SURGERY . HE IS MY LITTLE ANGEL HE ALSO HAS A CONDITION
CALLED PHIEFFER SYNDROM WHICH HE HAS HAD RECONSTRUTIVE
SKULL SURGERY FOR AND WE ARE PLANING TO HAVE MORE
SURGERIES .. I AM REALLY JUST NOW LOOKING FOR THINGS ABOUT
HIS HEART DEFECT ANS WAS WONDERING IF ANYONE OUT
THERE IS ALSO GOING THROUGH WHAT I AM GOING THROUGH ..
I FEEL AT SOMETIMES LIKE A M THE ONLY ONE WHOSE
EVERY BEEN THROUGHT THIS BUT I KNOW THATS NOT TRUE . AM
LOOKING FOR SUPPORT FROM ANYONE OUT THERE WHO CAN HELP ME
GET THROUGH ALL THIS THANKS ALOT AND GOD BLESS YOU
ALL
Thu Feb 15, 2001 6:34 am

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amyandjames13_99
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Forward 		Message #9 of 333 |
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Welcome, This is the Yahoo! Message Board for Special Hearts community.... 		specialhearts_00_1999
specialheart...
Offline Send Email 		Jan 5, 2000
12:15 am

I would just like to Thank everyone who takes the time to visit my club site. I would like anyone who would like to join to please feel free to. I am just ...
specialhearts_00_1999
specialheart...
Offline Send Email 		Jan 8, 2000
4:55 am

Anyone who would like to chat with myself or my wife we are almost always on line. huffman3shoney1 is my wife and is on ICQ.We also both have EMail accounts...
huffman3shoney1
Offline Send Email 		Jan 18, 2000
5:25 pm

hey I am a fourteen year old female and i was born with TOF and underwent open heart surgery at 14 months old to patch a hole in my heart and last time i went...
green_eyed9286
Offline Send Email 		Dec 27, 2000
12:38 am

My 5 yr. old daughter was born with a congenital heart defect called Truncus Arteriosus. She has had one open heart surgery thus far at the age of 1 month. ...
tinesangel
Offline Send Email 		Jan 3, 2001
2:33 pm

... Hi, I'm from the Philippines and my wife just gave birth to a babay girl diagnosed with truncus arteriosus. I would be very interested on the condition of...
zed4jc
Offline Send Email 		Nov 1, 2008
7:04 am

Hi All,<br>My five year old son was diagnosed with supraventricular tachycardia. On a recent Holter monitor there was evidence of three episodes in a day with...
cimnutty
Offline Send Email 		Jan 31, 2001
2:00 pm

I know a club that is perfect for every heart defect but let me find it. sorry. i forgot to join it under this s.n. but yah i will post it like real soon i...
green_eyed9286
Offline Send Email 		Feb 9, 2001
7:17 pm

here we go...<br><br><a href=http://clubs.yahoo.com/clubs/congenitalheartdefectsupport...
green_eyed9286
Offline Send Email 		Feb 9, 2001
7:43 pm

HELLO EVERYONE MY NAME IS AMY . I HAVE A SON THAT WAS DIAGNOSED WITH TETROLOGY OF FALLOT THE DAY AFTER HE WAS BORN . HE HAS ALREADY HAD ONE OPEN HEART SURGERY...
amyandjames13_99
amyandjames1...
Offline Send Email 		Feb 15, 2001
6:34 am

Sorry it has taken so long for us to reply to your messages...We have been really busy lately...My wife had a baby on January 1, and then my sister in law had...
huffman3shoney1
Offline Send Email 		Mar 27, 2001
12:34 am

Hey. i am sorry to hear about your son...Brian and I decided to make this club to help people who were going through life with heart problems or for the family...
huffman3shoney1
Offline Send Email 		Mar 27, 2001
12:37 am

Well I actually had the baby...I did not realize that Brian had logged in under me....special hearts and I are married and have 3 little girls..so may be you...
huffman3shoney1
Offline Send Email 		Mar 27, 2001
12:39 am

Hey Christine...my name is Stephanie and I am married to special hearts, Brian. We apoligize for the time it has taken us to reply to your messages but we had...
huffman3shoney1
Offline Send Email 		Mar 27, 2001
12:43 am

Libby, <br>We will be happy to let you vent to us..Brian, special hearts, and I have been through 6 open heart surgeries and numerous caths...We will also try ...
huffman3shoney1
Offline Send Email 		Mar 27, 2001
12:49 am

I am a new member and would like to intorduce myself.... My name is Kristin and I am a mom of a Heart baby... My daughter Kaitlynn was born with VSD , Severe ...
kaitlynns_mommy
Offline Send Email 		Nov 23, 2001
2:45 am
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