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specialhearts · Special Hearts - A place to talk about cogenital heart defects
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Reply | Forward Message #34 of 333 |
Re: [Special Hearts] HI

Hey Janet, my names Cindy, mom to Molly (and her twin bro wayne, and big sis
hayley). U name it, mo's got it, when people ask what her defect is, i tell
them to take a few letters out of the alphabet and start there, lol. She's had
five open hearts before she was four, and boy oh boy do i know where your coming
from when u say about not being able to talk to family and friends about it.
Dont get me wrong, my familys great, supportive, helpful in their ways, but they
dont understand how really feels, especially how it affects how we think. The
only one who seemed to understand were other parents when we're in the hosptial
for sumthing, and my husband, but he died a year ago, and i'm still totally lost
without him. So when ever u need to chat, or if i can help ya with any info,
dont be afraid to call on me. Sorry it took me so long to respond, but i
injured my shoulder pretty bad a month ago, and i'm still playing catch up with
the daily grind. i have instant messenger on
yahoo,,, broodofsin@... or broodofsyn@.... Mo's been threw alot, and
the only advice i can give, is to take it all one breath at a time, anything
more than that can send your brain into a serious overload ( been there done
that, lol) and thats sumthing you want to avoid if at all possible. Well, its
late, she's moochin a bit, time to hook her up to her feed, call me if ya need
me. God bless, Happy Holidays!



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Wed Dec 15, 2004 5:08 am

broodofsin
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Message #34 of 333 |
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I am a mother of a 3 year old beautiful little girl, she was born with pulmonary stenosis and anamolous pulmonary venous return, she has had a cath lab...
janet
janetk34
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Dec 2, 2004
5:52 am

hi janet, my name is lesley and i have a fourteen year old son with congenital heart defects his conditon is tricuspid atresia, ive lost count know of the...
lesley rowe
lesley37_2002
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Dec 2, 2004
11:15 pm

hi janet, my name is lesley and i have a fourteen year old son with congenital heart defects his conditon is tricuspid atresia, ive lost count know of the...
lesley rowe
lesley37_2002
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Dec 2, 2004
11:16 pm

Hi. i am Wendy. My 9 month old, Kyle, just had surgery & so we are 9hopefully) thru the bad times. His CHD is pretty mild compared to some out there. But I am...
Wendy Saintsing
pg02068
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Dec 3, 2004
2:39 am

Hey Janet, my names Cindy, mom to Molly (and her twin bro wayne, and big sis hayley). U name it, mo's got it, when people ask what her defect is, i tell them...
spencer davis
broodofsin
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Dec 15, 2004
5:08 am
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