Hi. i am Wendy. My 9 month old, Kyle, just had surgery & so we are 9hopefully)
thru the bad times. His CHD is pretty mild compared to some out there. But I am
here if you need someone to talk to. I absolutely know what you mean about
friends/family. I can talk to my husband, but he doesn't know about CHD's (he's
never read anything, only what I tell him). My best friend point-blank told me
she didn't want to talk about kyle's heart defect because "if she didn't talk
about it, she could pretend it was not real". This of course was prior to
surgery - like when I NEEDED my best friend.
Anyway - if you want a good site - check out www/tchin.org. They were my sanity
during the bad parts. If you choose to jion - check out the online group called
PDheart. That's the one I use. But if you don't join, there's a lot to learn
from the site too.

Good luck!


janet <janetk34@...> wrote:

I am a mother of a 3 year old beautiful little girl, she was born
with pulmonary stenosis and anamolous pulmonary venous return, she
has had a cath lab procedure, as well as open heart surgery. I am
just looking to talk to other people who understand how I am feeling
that I can help through the tough times and who can help me as well.
I don't talk about how I feel with friends or family as I feel they
do not understand or want to hear about it.




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Wendy,
mom to Shawn 9 yrs old (HH)
& Kyle 9 mos old (partial AV Canal Defect - has two ASD's & cleft mitral valve
- repaired on 11/10/04 at CHB)
& wife to David
from Central Massachusetts.
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