hi janet, my name is lesley and i have a fourteen year
old son with congenital heart defects his conditon is
tricuspid atresia, ive lost count know of the amount
of catheters and hospital stays and visits we have
had, i may need highlights in my grey hair he,s caused
me but were both still here taking each day as it
comes and trying to make the most of it, but it is so
hard, especially when he talks about the future and i
know he may not have one. its hard being away from my
other kids when we have long stays in hospital. i feel
guilty for him having this condition even though i
know it isnt so. knowing cant help him when in pain
but can only b with him and love him all i can. i dont
think anybody but us mothers knows how much it hurts
us inside. i nearly lost him in early pregnancy doc
said put feet up so u dont loose baby at times i wish
i,d gone jogging, all what hes been through my little
soldier.
if u would like to call me any time for a proper chat
let me know and will give u my number or u can give me
yours, up to u, i think ive gassed your head off
enough for now, hope to hear from u again, take care
of your angel and just as important yourself she needs
u.


love to u both














--- janet <janetk34@...> wrote:

>
> I am a mother of a 3 year old beautiful little girl,
> she was born
> with pulmonary stenosis and anamolous pulmonary
> venous return, she
> has had a cath lab procedure, as well as open heart
> surgery. I am
> just looking to talk to other people who understand
> how I am feeling
> that I can help through the tough times and who can
> help me as well.
> I don't talk about how I feel with friends or family
> as I feel they
> do not understand or want to hear about it.
>
>
>
>




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