--- In specialhearts@yahoogroups.com, rochie_smiley <no_reply@...>
wrote:
>
> Hello, I just recently gave birth to a baby boy with Pulmonary
Valve
> Atresia with Intact Vetricular Septum (PVAIVS). I am located in
> Manila, Philippines. I hope I can communicate with someone from
> Philippines, too who has a special someone (child, relative, etc)
with
> the same case. Please, please e-mail me.
>

Hi,

I'm from Pasig, Philippines and have read your post. My wife gave
birth last September to a baby girl diagnosed with truncus
arteriosus. A much rarer congenital heart condition. But we are
hanging on God's grace. It may be different to that of PVAIVS but I
think both are congenital in nature. Right now, we are seeking
treatment at the Philippine Heart Center. There is an absence of any
Congenital Heart Disease (CHD) support group here in the Philippines,
(or I might be wrong). I welcome connecting with someone who could
relate somewhat to what we are going through. I can be reached at
09178990712.

Hanging on,

Jed