Hi Cindy. Thank you for the hope. My name is Wendy. Kyle was born 2/10/04. He is
my Angel. I was blessed by not finding out he has partial AVCD until 4/27/04. I
say blessed because I had over 2 months to know & love him as a normal child.
Which I understand from the cardiologist he basically is normal (he can walk,
run, etc) but had I known when he was born that he has a heart defect, I prob
would have acted like he was an egg about to break. We go to the cardi tomorrow
afternoon.
I am very scared, but I have mostly swallowed the fear. I have a 9 yr old son
(Shawn) who is very afraid that the brother he has wanted for yrs is going to
die. I reassure him that Kyle will (hopefully) not need surgery until 4 or 5 yrs
old & the cardi says the outcomes are almost 100% now. The surgery part is so
scary to me, that although I know it will happen, I can't let myself think about
it. It sounds like you have had a much more rough road than what I will face.
Kyle will (hopefully) only have to need one surgery.
How scary is the surgery? What is the recuperation time like?
We live in Spencer, MA so Kyle will go to Boston Children's also. He is being
seen now by Dr. Pollack at UMass in Worcester. I hear she is very good, but that
UMass doesn't do the surgeries, you have to go to Boston. I want to get a second
opinion anyway.
Thank you again for the support. My other email is saintsingl@... if you
want to send directly to me. Wendy

spencer davis <broodofsin@...> wrote:
Hi, my names Cindy, mother to molly 4-28-99, she was born with asd, vsd, avc,
atrioventricular heart defect, and hypoplastic left heart syndrome, which all
wasnt dected until she was five weeks old, her twin brother was fine. She's had
4 open hearts before she was four, well techinally 5 but i dont really count the
extra one, cuz it was done within 24 hours of the first one, when her chest was
still left open. She has a mic-key tube ( tube in her stomache) to sustain her.
So i guess u could say we've been down the surgery road enuff times we dont need
the map anymore. I take her to boston childrens hosptial ( and yes they are
awesome there). If you have any questions or just wanna chat, please feel free
to contact me at this address or at synsyn67@... and i have Instant
Messenger for both. I know right now alot may seem really scary, but just take
a deep breath, and have faith in your child, threw all this i have learned that
molly is the strongest person i know on
earth. Please contact me if u need to. Cindy


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