Hi, my names Cindy, mother to molly 4-28-99, she was born with asd, vsd, avc,
atrioventricular heart defect, and hypoplastic left heart syndrome, which all
wasnt dected until she was five weeks old, her twin brother was fine. She's had
4 open hearts before she was four, well techinally 5 but i dont really count the
extra one, cuz it was done within 24 hours of the first one, when her chest was
still left open. She has a mic-key tube ( tube in her stomache) to sustain her.
So i guess u could say we've been down the surgery road enuff times we dont need
the map anymore. I take her to boston childrens hosptial ( and yes they are
awesome there). If you have any questions or just wanna chat, please feel free
to contact me at this address or at synsyn67@... and i have Instant
Messenger for both. I know right now alot may seem really scary, but just take
a deep breath, and have faith in your child, threw all this i have learned that
molly is the strongest person i know on
earth. Please contact me if u need to. Cindy


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