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sotossyndromemedical · Sotos Syndrome Medical Discussion Group
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Group Information

  • Members: 29
  • Category: Children's
  • Founded: Feb 4, 2009
  • Language: English
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Description

This group is a specific group to ask medical related questions and receive feedback from families of people diagnosed with Sotos Syndrome. This is not a support group, it is solely to compare medical problems related to the genetic mutation/deletion known as Sotos Syndrome.

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Re: New to group
Thanks Mel, Hunter has made great progress but I feel this year not so much due to his teachers. Although he is pulled out for Math, they still have to teach
Posted - Fri May 4, 2012 6:41 pm
 burke_dawn@...
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Re: New to group
Dawn, This is a very difficult question. I think it truly depends on your school, the teacher, and the commitment of your special education director. My son
Posted - Fri May 4, 2012 2:45 am
 kstategirl68
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ideas needed for Denny an orphan age 2 with SOTO
WACAP (www.wacap.org) a non-profit adoption agency is seeking a family to adopt an orphan boy age 2 with SOTO Syndrome. Please contact FamilyFinders@...
Posted - Fri May 4, 2012 2:33 am
 adoptanorphan
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New to group
Hi Everyone, My name is Dawn and I have a son- Hunter with Sotos that is 11 years old. He was held back in first grade and is in 4th grade. He has an IEP and
Posted - Fri May 4, 2012 2:33 am
 burke_dawn@...
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Re: Newbie Questions
It sounds like you are well on yuor way to a very good Sotos experience! It is great news to hear all the wonderful things your son is doing. Every
Posted - Sun Nov 13, 2011 2:30 pm
 kstategirl68
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Message History

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2012 4
2011 2
2010 2
2009 14 2 8 3 1
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