Friday, October 30, 2009The UK Wide Personality Disorder Spectrum Survey
Report Oct 2009
<http://birminghamuserwatch.blogspot.com/2009/10/ahhha-uk-wide-personali\
ty-disorder.html> .
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By : Art de Rivers Now Public.com
<http://my.nowpublic.com/health/uk-user-led-personality-disorder-report-\
released>


Mental Health Watching In The UK/US .




FOR FULL DOWNLOAD OF 46 Page REPORT IN PDF FORMAT SEE BELOW

See FULL REPORT HERE COURTESY OF NING.COM
<http://api.ning.com/files/DNSIODCHvFpWxVCpSTQVljAvskEKu7*uKb7UC3zOFa4_/\
TheU.K.WideUserLedPersonalityDisorderSpectrumSurveyReportOct2009.pdf>
Also available at :
<http://www.justice4kate.com/UKPDUsersurvey2009.pdf> Justice4Kate.com
<http://www.justice4kate.com/UKPDUsersurvey2009.pdf>



This UK Personality Disorder Spectrum Survey was first reported about on
NowPublic.com
<http://my.nowpublic.com/health/independent-personality-disorder-survey-\
uk-patients> and the report stage is a first of its kind for the UK . As
of today it has been sent to Dr Lynne Jones M.P
<http://www.poptel.org.uk/lynne.jones/> the Joint Chair of the All
Parliamentary sub Committee on mental health and the Care Quality
Commission UK.

Notaxpayers were billed for this survey . No large mental
healthcharities were involved . No lottery funds were used up. It
wasconsulted upon , done, designed and completed by the good spirit
ofP.D. service Users of the UK NHS services . It was truly User-led.
Itwas politically independent, though the Socialist Health
Associationfreely hosted the survey on Surveymonkey.com

Over to the Press release which has all the details :

"TheUser Led U.K. Personality Disorder Spectrum Survey was designed
Onlineafter consultation with UK Service Users and Phil Lockwood a
volunteeradvocate and support who runs a P.D. forum. There is a concern
aboutloss of life (a suicide rate of up to 77%) in the P.D.
spectrumcommunity - (See the UK Dept of Health's "New Horizons" Page 72
quotedin the Survey results)
The UK Wide Personality Disorder Spectrum Survey
<http://www.surveymonkey.com/s.aspx?sm=FgjD5hpDXCCMeqRbbRLTWw_3d_3d> was
hosted in May 2009 by the Socialist Health Association and withMartin
Rathfelder's help who also helped promote it . It was also aidedin
promotion by the National Association of LINks members and theirChair,
Malcolm Alexander .
Thereport and independent stewardship of the survey was completed by
PaulBrian Tovey an Independent Mental Health Monitor and Service
User.There was no cost to the taxpayer. All effort was voluntary.
ByOct 2009, 134 UK NHS Service Users had completed the survey . The
vastmajority of the Service Users were women (102) . Most respondents
(97)mainly self attributed the often co-morbid condition-description
ofBorderline Personality Disorder to themselves.
The NHS mainly offered medication to most of the respondents (109).
Therespondents (109) in Question 11. however, mainly wanted therapies
andgood social supports and when asked in their own words trended
stronglytowards a mixture of those. The NICE guidelines of Jan 2009
statesmedication should only be used in crisis.

The respondents when asked if the NHS was adequate for their needs
stated :
No - 52% (70 Users) Sometimes - 43% ( 58 Users) Yes - 4.5% (6 Users)
When asked if respondents had Care Co-ordinators and Care Plan
Approaches (CPA's) which included crisis plans (NICE guidelines
<http://www.nice.org.uk/nicemedia/pdf/Borderline%20personality%20disorde\
r%20full%20guideline-published.pdf> support this particularly of
Borderline P.D.)
59% (78 ) stated No . 33% (44) stated Yes.
Itis a cause for some concern. There are many more findings in the
surveywith Users expressing the problems they have had with services in
theirown words .
The Care Quality Commission will be contacted and information offered to
them . 119 NHS Trust or service locations were also named in the
survey ."


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