This group is for parents and carers of children diagnosed with Dravet Syndrome (also known as SMEI Severe Myoclonic Epilepsy of Infancy). Dravet syndrome is an intractable epilepsy that starts in infancy.

********************************************
Please Note: Any advice given here by parents or other members should be discussed with doctors before being acted upon. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ This site is dedicated to the memory of Kevin James Richardson. A brave little boy who touched the hearts of us all and became an angel on 22 March 2003. Please also see our Family Network on the IDEA league website: http://www.idea-league.org/