A support list for all affected in some way by Shwachman-Diamond Syndrome (SDS). We wish to provide those affected by SDS a place to find information, encouragement and support.

We think that you will find encouragement, strength and hope as you interact with those on the list. This is a list full of wonderful people and lots of information! Medical questions are welcome! Please check with your physician before changing existing treatment or trying any new treatment.

We all travel down the same SDS Highway 101 and this list is a help on that journey. Whether you or your child are facing possible diagnosis, transplant or just living with day to day SDS trials. We're here to support and encourage you no matter where you are along your journey.