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shwachmansyndrome · Shwachman-Diamond Family/Friends list

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Description

A support list for all affected in some way by Shwachman-Diamond Syndrome (SDS) or SDS-like disease. We wish to provide those affected by SDS or SDS-like disease a place to find information, encouragement and support. If you are going through diagnosis, if you have been diagnosed with SDS or SDS-like disease, you are welcome to join! If you have a disease similar to SDS, you are welcome to be here...neutropenia, pancreatic insufficiency, failure to thrive and celiac to name a few. We even have several families with Shwachman-Diamond Syndrome and Mitochondrial disease (Mito).

We think that you will find encouragement, strength and hope as you interact with those on the list. This is a list full of wonderful people and lots of information! Medical questions are welcome! Please check with your physician before changing existing treatment or trying any new treatment.

We all travel down the same SDS Highway 101 and this list is a help on that journey. Whether you or your child are facing possible diagnosis, transplant or just living with day to day SDS trials. We're here to support and encourage you no matter where you are along your journey. We have members from around the world who have been diagnosed with SDS or SDS-like disease, celiac, pancreatic insufficiency and many who are on a diagnostic journey to find out what disease they have. ALL are welcome to participate on our list.

This list is not affiliated with Shwachman-Diamond America. Any views expressed on a board member's personal blog, website or Facebook do not express the opinions of Shwachman-Diamond America or the SDA Board.

Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2013 5 4 5 2 2 3
2012 177 112 42 28 37 33 7 5 2 1 3 7
2011 449 186 135 168 250 312 173 298 129 223 132 117
2010 1280 827 914 863 465 774 551 1077 1001 519 384 223
2009 3133 2841 2342 2136 2166 1601 1787 1064 1165 1196 695 933
2008 2645 1892 2280 1638 1586 1592 1523 1864 2048 1280 1460 2186
2007 1079 1700 1937 1204 733 920 1070 933 1292 1068 1201 1661
2006 816 530 680 499 452 938 293 813 592 783 999 879
2005 453
2000 22
1999 208 328 285 164 356 46

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