Hi, I read your email and can totally relate to your story.
I find that dealing with my own husband is frustrating. I started taking her to
a child psycologist who is an expert on SM. My husband is opposed to this
because he thinks there is nothing wrong with her. Thats because he sees how
talkative and normal she is at home. He doesnt see her in preschool or birthday
parties the way I do.
It's frustrating to deal with her problems all on my own. But I am going to
continue to get her the help she needs. She is in her last year of preschool (4
years) and I want her well for kindergarten. That is my goal
Good Luck with your daughter
Victoria

megjosetti <mjosetti@...> wrote:
Hi everyone

I am almost in tears because I have found this support group. My
daughter is 5 1/2. I always said that she turned my world upside
down when she was born. She was colicky and never wanted to sleep.
I could go on and on telling the background but my point is that I
always protected and catered to her needs and kept her in a very
safe environment so the signs of SM were not as apparent to me until
last year when she started preschool (even though I think the
tendancy was always there) We moved and she was not happy about
that and when she started preschool she never spoke. She only
attended for 2 months when we moved again (my husband and I
seperated for a short time.) I decided not to put her in a new
preschool and I devoted the spring/summer to getting our family back
together and we started to meet neighbors and I was seeing progress.
Amanda was playing with the neighbors but took a couple months
before she started talking to them. Her preschool teacher told me
about SM and then I took her for her yearly check up and the Doctor
also felt that there was a problem. With the stress in our family
this past year I still thought I could fix the situation myself.
Our family was back together and she had her Dad back who she was
very close to. I did not research SM this summer as much as I now
realize I should have but when school started 2 weeks ago I knew our
problems where not over. Which brings me to my present situation
and request for advice. Amanda has been in school for 2 weeks and
has not spoken to the teacher or the kids. I have been in constant
contact with the teacher and have forwarded extensive info on SM.
She has not responded to the info and in my opinion is handling my
daughter as a child with a behaviour problem - sort of like the
stronger person will win. She has no idea that she will not win the
battle and she will negatively affect my daghter in the process.
This week when I picked my daughter up one day she was not out at
pick up. Another teacher told me that the teacher had kept her back
to "work" with her. about 5 minutes later out comes my daughter
with the teacher and my daughter was sobbing uncontrollably. As a
mother I knew the crying had been going on for some time. The
teacher told me she was trying to get Amanda to put her papers in
her bag - this is a major issue with the teacher. I was upset but
am trying to work with the system. I told the teacher I was
thrilled she would spend indivual time with my daughter but in that
context she was doing more harm than good. She did not keep her
back again. I have had two school parents address me today with
concerns for Amanda, worried that she might not be in the right
class. Then when I dropped her off another little girl pointed to
my daughter and said "she's a gumpy butt", the teacher's assistant
did nothing and another parent reprimanded the child. I was finally
angry and after dropping my son off at preschool I called the school
and said I was on my way to speak to the principal and if she was
not available that they should have my daughter in the office
because I was taking her home. The principal was there and
waiting. She had never heard of SM (even though I sent info in and
the principal has been monitoring the situation. She felt that the
teacher was not convinced that Amanda had this condition. She stood
by her teacher as being the best of the three teachers to deal with
Amanda and scheduled a "Team Meeting" for monday with me, the
teacher, the principal, school councelor and school psycologist.
Not only do I feel outnumbered but my husband will be out of town so
cannot be there. I also find it amazing that after a child has
stood motionless in the class room for two weeks without an ounce of
progress that the school would not be calling me. In addition they
have "assigned" another little girl to help with Amanda and
encourage her. Is this fair to a 5 year old just starting school
herself? luckily I have met the little girls parents, ironically
they are both psycologists and run a group home - we have gotten the
girls together to play and although Amanda has not spoken to them
she played great and they were wonderful. Any words of advice in
dealin with the school. I want to make a difference for my dughter
and any future child at this school that may have this problem. I
also have not found a therapist in the area that is familiar with
SM - I live in Delaware. In closing, I am sure this sounds familiar
but when in a comfortable environment my daughter is outgoing,
funloving, mature and very bright. It is so hard to see a child
with so much potential suffering with this anxiety. How can this
town and this school district not know about this problem. There is
a downs syndrome boy in the class that they are accomidating yet the
principal told me that they are not equipped to deal with my
dughters problem. Sorry this was so long but I have 5 1/2 years of
dealing with this alone so I am spilling my guts. I look forward to
responses


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