that's awesome news!

i'm actually taking my mom to the oncologist today too - but we already
know that the cancer is gone - 5 years!  so we are hoping the doc cuts
her free and takes her off the meds.

i'm so happy for you and your family - it's such a relief.  SD is one
thing to have to worry about - but add anything else to it - sigh.

--d

Praise God he knows our needs.I hope your Mom continues to do well.
 
Candy

Live each day as it was your last one.

--- On Mon, 11/10/08, fanchermitzi <fanchermitzi@...> wrote:

From: fanchermitzi <fanchermitzi@...>
Subject: [Scleroderma Friends and Family ] mama
To: sclerodermafriendsandfamily@yahoogroups.com
Date: Monday, November 10, 2008, 8:29 PM






Hello everybody it has been a while since I posted anything about
mama. She has had a rough go of it, but she is doing ok now.. she had
six rounds of chemo. and the dr. did another pet scan and the cancer in
her rib is gone. he said that the other spots that she has have shrunk
greatly . when he told her that he said I dont quite know what to
say. and mama told him to say praise the Lord. and that is what we all
did thank yall so much for all of your prayers still continue to pray
for her. Prayer and the Lord is what will get her and us through this.
He said that she has 1/3 of the cancer left and will start chemo up
again after christmas. so I say thanks again for all of your
prayers.Love MIt.........


















[Non-text portions of this message have been removed]

Hello everybody it has been a while since I posted anything about
mama.  She has had a rough go of it, but she is doing ok now..  she had
six rounds of chemo. and the dr. did another pet scan and the cancer in
her rib is gone. he said that the other spots that she has have shrunk
greatly .  when he told her that he said I dont quite know what to
say.  and mama told him to say praise the Lord. and that is what we all
did thank yall so much for all of your prayers still continue to pray
for her.  Prayer and the Lord is what will get her and us through this.
He said that she has 1/3 of the cancer left and will start chemo up
again after christmas.  so I say thanks again for all of your
prayers.Love MIt.........

Hi Teena
   Welcome to the group. My Sister had Scleraderma it was a long process to get
her dx with the right thing to unfortuantely she passed away 11 years ago. I am
glad to hear your husband is doing good. If i can help you in any way please let
me know.I will be keeping you and your husband in my prayers.



   Candy

teenaclark <tjwcs@...> wrote:
           HI,

I just wanted to introduce myself. My name is Teena and my husband was
diagnosed with Scleroderma last December. It was a long battle to
finally figure out what was actually happening to him. We finally found
a Dr. that took us seriously that something was going on. He then
diagnosed my DH with Scleroderma.
Things are much better now that he is getting the proper treatment and
seeing a good Dr.

Well, just wanted to say "hi". I look forward to talking with everyone.

Teena






Live each day as it was your last one.

---------------------------------
Be a better friend, newshound, and know-it-all with Yahoo! Mobile.  Try it now.

[Non-text portions of this message have been removed]

HI,

I just wanted to introduce myself. My name is Teena and my husband was
diagnosed with Scleroderma last December. It was a long battle to
finally figure out what was actually happening to him. We finally found
a Dr. that took us seriously that something was going on. He then
diagnosed my DH with Scleroderma.
Things are much better now that he is getting the proper treatment and
seeing a good Dr.

Well, just wanted to say "hi". I look forward to talking with everyone.

Teena

just wanted to say welcome to our new members - feel free to intorduce
yourselves - good to have you with us!

--diane

Mitzi
   I was reading your posts. I am sorry about Mama. I have to say I don't think
much of that Dr. if he doesn't believe God can help your Mama I feel for him. On
another note I will keep your Mama in my prayers dear I for one believe in
miracles I have seen alot  and that is the only answer there is. Hang in there
if I can help in any way please let me know. I have dealt with Scleroderma and
lung cancer. So I know what you are going through.

   hugs to you
   Candy


Live each day as it was your last one.

---------------------------------
Looking for last minute shopping deals?  Find them fast with Yahoo! Search.

[Non-text portions of this message have been removed]

wow - wish the news was better - you're in my thoughts and prayers -
how are YOU doing?  i know how tough and whirlwind like it can all
be - you need to take care of yourself too!

on a brighter note - my mom's mri is negative - we're waiting to see
what the doc's plan is now -

take care -

d


--- In sclerodermafriendsandfamily@yahoogroups.com,
southpinelogging@... wrote:
>
> Hey Diane, we talked to the dr.'s the other day. They said she had
stage IV none one cell cancer. There are two spots on her lungs its
in the lymphnodes in the middle of her chest and in her rib that is
why she was hurrting from taking a deep breath. They have not said a
treatment yet. went today and had to have another needle biopsey.
They need more tissue to see where the c orginated .? they dont think
it started in the lung. all prayers are needed. know you will. I will
keep in touch. she told the dr that I dont know about tomorrow but I
know who holds my hand. and I know he will help me. That dr. told her
Ive been here 15 years and he has never helped anyone with this yet.?
So we are going to show him just what all our God can do. Love Mitzi
>
>

Hey Diane, we talked to the dr.'s the other day. They said she had stage IV none
one cell cancer. There are two spots on her lungs its in the lymphnodes in the
middle of her chest and in her rib that is why she was hurrting from taking a
deep breath. They have not said a treatment yet. went today and had to have
another needle biopsey. They need more tissue to see where the c orginated .?
they dont think it started in the lung. all prayers are needed. know you will. I
will keep in touch. she told the dr that I dont know about tomorrow but I know
who holds my hand. and I know he will help me. That dr. told her Ive been here
15 years and he has never helped anyone with this yet.? So we are going to show
him just what all our God can do. Love Mitzi


-----Original Message-----
From: diane <dmcg1012@...>
To: sclerodermafriendsandfamily@yahoogroups.com
Sent: Sun, 9 Mar 2008 7:19 am
Subject: [Scleroderma Friends and Family ] mitzi - how's mama?






haven't head from you - was wondering how things were going?

haven't heard anything back from my mom's mri yet - hopefully this week.

--diane






[Non-text portions of this message have been removed]

just found the article online for those who want to read it -
http://www.womansday.com/health/12875/i-didnt-recognize-myself.html

keep in mind - the anibiotic they talk about has NOT been proven to
cure anything - it works for some people, and not for others - just
didn't want anyone to think that there was a "cure" out there -

would love to hear your thoghts after you read the article -

--d

my sister called my attention to this article - it is in this month's
Woman's Day magazine - it talks about a woman who has sys. SD and an
antibiotic treatment she tried -

thought i'd pass it along if anyone is interested - pick it up.

--d.

haven't head from you - was wondering how things were going?

haven't heard anything back from my mom's mri yet - hopefully this week.

--diane

hi all -

below is a copy of an email i sent to trudy in regards to the email
confusion - if you are recieving all emails individually, and
wondering why - i hope this expalins it -

like i said to trudy - if you choose to change your preferences, i
ask you select 'special notices' and not 'no email'

please elt me know if there are any questions -

_____

trudy -

first of all - relax.  when you signed up for the group, you marked
to get individual emails.  this means ANY message posted to the club
will be emailed to you.

there are 3 options for reading group messages -
1 - individual emails - like you have been recieving.
2 - a group email, 1 email message a day with all message posted that
day.
3 - go to the website and read the messages yourself.

i- as group moderator, have gone to your account and changed your
preference to the 3rd option.  you will not recieve anymore emails -
you will need to go to the site to read the messages.  the only
messages you will recieive are from me - with special announcments,
etc.

if this is not what you want - you can go into the group membership
page and change this options yourself.  i ask that you do not opt for
no email at all, but rather the special digest option...this will
allow me as group moderator to send you group related information -
chages, etc.  "group business" type stuff

please let me know if i can help in any way -

diane -

group moderator
sclerodermafriendsandfamily


--- In sclerodermafriendsandfamily@yahoogroups.com, trudy smith
<trudyrose0921@...> wrote:
>
> my name is not mitzi do not email to me trudyrose ok thank you
>

my name is not mitzi do not email to me trudyrose ok thank you

diane <dmcg1012@...> wrote:          hi mitzi -

just getting a chance to catch up on reading messages - know that you
and your mama are in my prayers! i know how scary scleroderma +
cancer can be - my mom (has SD) was diagnosed with breast cancer 4.5
years ago, and because of the SD had to have a mascetomy instead of a
lumpectomy and radiation - they were afraid the raditation would burn
her skin and case SD problems - things had been going well - until
last week she had a bad mammogram, so we are back on the roller
coaster -

so, i can really relate to how you are feeling - hope that things
turn out ok and there is "good news" on monday. taking my mom to get
an mri on thursday, so hopefully that will help us figure out what we
are dealing with.

prayer works - and i'll be praying for you and your mama for
strength, and for the docotrs for knowledge -

take care -

diane

--- In sclerodermafriendsandfamily@yahoogroups.com,
southpinelogging@... wrote:
>
> Hello everyone, Thought I would let you know about mama. after
several test they said that mama has lung cancer.? she did her pet
test
today and will find out results monday. please join with me to pray
that the Lord will take hold of this situation and that the cancer
will
be in that one spot so that they can treat it easily. If any of you
have delt with this before please let me know. your friend Mitzi
>
>
> [Non-text portions of this message have been removed]
>






---------------------------------
Be smarter than spam. See how smart SpamGuard is at giving junk email the boot
with the All-new Yahoo! Mail

[Non-text portions of this message have been removed]

hi mitzi -

just getting a chance to catch up on reading messages - know that you
and your mama are in my prayers!  i know how scary scleroderma +
cancer can be - my mom (has SD) was diagnosed with breast cancer 4.5
years ago, and because of the SD had to have a mascetomy instead of a
lumpectomy and radiation - they were afraid the raditation would burn
her skin and case SD problems - things had been going well - until
last week she had a bad mammogram, so we are back on the roller
coaster -

so, i can really relate to how you are feeling - hope that things
turn out ok and there is "good news" on monday.  taking my mom to get
an mri on thursday, so hopefully that will help us figure out what we
are dealing with.

prayer works - and i'll be praying for you and your mama for
strength, and for the docotrs for knowledge -

take care -

diane


--- In sclerodermafriendsandfamily@yahoogroups.com,
southpinelogging@... wrote:
>
> Hello everyone, Thought I would let you know about mama. after
several test they said that mama has lung cancer.? she did her pet
test
today and will find out results monday. please join with me to pray
that the Lord will take hold of this situation and that the cancer
will
be in that one spot so that they can treat it easily. If any of you
have delt with this before please let me know. your friend Mitzi
>
>
> [Non-text portions of this message have been removed]
>

dont email me

"Candy ( Renee) Richards" <candy_rkr@...> wrote:          Mitizi
You are welcome dear.Hang in there.

CAndy

southpinelogging@... wrote:
Thanks candy all your prayers are welcomed.? I will let you know what I find out
monday. thanks for the site. Hugs to you to Mitzi

-----Original Message-----
From: Candy ( Renee) Richards <candy_rkr@...>
To: sclerodermafriendsandfamily@yahoogroups.com
Sent: Thu, 28 Feb 2008 6:17 pm
Subject: Re: [Scleroderma Friends and Family ] Mama

Mitzi
Hi my name is Candy and I don't post much here anymore.MY sister past away from
Scleroderma 11 years ago. My husband is a lungcance/brian cancer survivor I
belong to a lung cancer suppport group on line. They are a bunch of wonderful
people who have became family to me here is the address
Lung-Cancer-Support@yahoogroups.com I found this to be a lot of help. I am sorry
about your Mom and I will add her tom my prayers Mitzi along with you.

Hugs to you
Candy

southpinelogging@... wrote:
Hello everyone, Thought I would let you know about mama. after several test they
said that mama has lung cancer.? she did her pet test today and will find out
results monday. please join with me to pray that the Lord will take hold of this
situation and that the cancer will be in that one spot so that they can treat it
easily. If any of you have delt with this before please let me know. your friend
Mitzi

[Non-text portions of this message have been removed]

Live each day as it was your last one.

---------------------------------
Never miss a thing. Make Yahoo your homepage.

[Non-text portions of this message have been removed]

???

[Non-text portions of this message have been removed]

Live each day as it was your last one.

---------------------------------
Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Non-text portions of this message have been removed]






---------------------------------
Be smarter than spam. See how smart SpamGuard is at giving junk email the boot
with the All-new Yahoo! Mail

[Non-text portions of this message have been removed]

Mitizi
   You are welcome dear.Hang in there.

   CAndy

southpinelogging@... wrote:
           Thanks candy all your prayers are welcomed.? I will let you know what
I find out monday. thanks for the site. Hugs to you to Mitzi

-----Original Message-----
From: Candy ( Renee) Richards <candy_rkr@...>
To: sclerodermafriendsandfamily@yahoogroups.com
Sent: Thu, 28 Feb 2008 6:17 pm
Subject: Re: [Scleroderma Friends and Family ] Mama

Mitzi
Hi my name is Candy and I don't post much here anymore.MY sister past away from
Scleroderma 11 years ago. My husband is a lungcance/brian cancer survivor I
belong to a lung cancer suppport group on line. They are a bunch of wonderful
people who have became family to me here is the address
Lung-Cancer-Support@yahoogroups.com I found this to be a lot of help. I am sorry
about your Mom and I will add her tom my prayers Mitzi along with you.

Hugs to you
Candy

southpinelogging@... wrote:
Hello everyone, Thought I would let you know about mama. after several test they
said that mama has lung cancer.? she did her pet test today and will find out
results monday. please join with me to pray that the Lord will take hold of this
situation and that the cancer will be in that one spot so that they can treat it
easily. If any of you have delt with this before please let me know. your friend
Mitzi

[Non-text portions of this message have been removed]

Live each day as it was your last one.

---------------------------------
Never miss a thing. Make Yahoo your homepage.

[Non-text portions of this message have been removed]

???

[Non-text portions of this message have been removed]






Live each day as it was your last one.

---------------------------------
Looking for last minute shopping deals?  Find them fast with Yahoo! Search.

[Non-text portions of this message have been removed]

Thanks candy all your prayers are welcomed.? I will let you know what I find out
monday. thanks for the site. Hugs to you to Mitzi


-----Original Message-----
From: Candy ( Renee) Richards <candy_rkr@...>
To: sclerodermafriendsandfamily@yahoogroups.com
Sent: Thu, 28 Feb 2008 6:17 pm
Subject: Re: [Scleroderma Friends and Family ] Mama






Mitzi
Hi my name is Candy and I don't post much here anymore.MY sister past away from
Scleroderma 11 years ago. My husband is a lungcance/brian cancer survivor I
belong to a lung cancer suppport group on line. They are a bunch of wonderful
people who have became family to me here is the address
Lung-Cancer-Support@yahoogroups.com I found this to be a lot of help. I am sorry
about your Mom and I will add her tom my prayers Mitzi along with you.

Hugs to you
Candy

southpinelogging@... wrote:
Hello everyone, Thought I would let you know about mama. after several test they
said that mama has lung cancer.? she did her pet test today and will find out
results monday. please join with me to pray that the Lord will take hold of this
situation and that the cancer will be in that one spot so that they can treat it
easily. If any of you have delt with this before please let me know. your friend
Mitzi

[Non-text portions of this message have been removed]

Live each day as it was your last one.

---------------------------------
Never miss a thing. Make Yahoo your homepage.

[Non-text portions of this message have been removed]




???


[Non-text portions of this message have been removed]

Mitzi
   Hi my name is Candy and I don't post much here anymore.MY sister past away
from Scleroderma 11 years ago. My husband is a lungcance/brian cancer survivor I
belong to a lung cancer suppport group on line. They are a bunch of wonderful
people who have became family to me here is the address 
Lung-Cancer-Support@yahoogroups.com  I found this to be a lot of help. I am
sorry about your Mom and I will add her tom my prayers Mitzi along with you.

   Hugs to you
   Candy

southpinelogging@... wrote:
           Hello everyone, Thought I would let you know about mama. after several
test they said that mama has lung cancer.? she did her pet test today and will
find out results monday. please join with me to pray that the Lord will take
hold of this situation and that the cancer will be in that one spot so that they
can treat it easily. If any of you have delt with this before please let me
know. your friend Mitzi

[Non-text portions of this message have been removed]






Live each day as it was your last one.

---------------------------------
Never miss a thing.   Make Yahoo your homepage.

[Non-text portions of this message have been removed]

Thanks so much. where did your mama have her cancer and did she have scleroderma
to.? mamas is in her lower left lung we go monday to get results of test. thanks
again


-----Original Message-----
From: trudy rose smith <trudyrose0921@...>
To: sclerodermafriendsandfamily@yahoogroups.com
Sent: Thu, 28 Feb 2008 1:44 pm
Subject: [Scleroderma Friends and Family ] Re: Mama






--- In sclerodermafriendsandfamily@yahoogroups.com,
southpinelogging@... wrote:
>
> Hello everyone, Thought I would let you know about mama. after
several test they said that mama has lung cancer.? she did her pet
test today and will find out results monday. please join with me to
pray that the Lord will take hold of this situation and that the
cancer will be in that one spot so that they can treat it easily. If
any of you have delt with this before please let me know. your friend
Mitzi
>
>
> [Non-text portions of this message have been removed]

Thank you for emailing me. I will pray for mama as my mom had died of
lung cancer. It took alot of effect on me as i was with her till the
end she died in my arms. Be strong for her always hold her hands don't
be scared. she will know u are the strong one always tell her that you
there for her and comfort her. when she gets angry don't take it
serious as its part of the cancer i have been there. I pray that she
will recover from her health. may god bless you each and every day. I
pray for u an her take care god bless you
trudy
email me anytime when u need someone to talk too.
>






[Non-text portions of this message have been removed]

--- In sclerodermafriendsandfamily@yahoogroups.com,
southpinelogging@... wrote:
>
> Hello everyone, Thought I would let you know about mama. after
several test they said that mama has lung cancer.? she did her pet
test today and will find out results monday. please join with me to
pray that the Lord will take hold of this situation and that the
cancer will be in that one spot so that they can treat it easily. If
any of you have delt with this before please let me know. your friend
Mitzi
>
>
> [Non-text portions of this message have been removed]

Thank you for emailing me. I will pray for mama as my mom had died of
lung cancer. It took alot of effect on me as i was with her till the
end she died in my arms. Be strong for her always hold her hands don't
be scared. she will know u are the strong one always tell her that you
there for her and comfort her. when she gets angry don't take it
serious as its part of the cancer i have been there. I pray that she
will recover from her health. may god bless you each and every day. I
pray for u an her take care god bless you
trudy
email me anytime when u need someone to talk too.
>

Hello everyone, Thought I would let you know about mama. after several test they
said that mama has lung cancer.? she did her pet test today and will find out
results monday. please join with me to pray that the Lord will take hold of this
situation and that the cancer will be in that one spot so that they can treat it
easily. If any of you have delt with this before please let me know. your friend
Mitzi


[Non-text portions of this message have been removed]

glad to hear things are going ok -

mom has been having difficulties with sores on her foot - she has
basically been home since april - she can only wear bedroom slippers,
and the ones that are most comfortable don't have great soles on them
for alot of walking - she'll just get healed up, and then a small one
will start again - poor thing - she has been so patient about it, but
it's starting to get to her - anyone else heard of this  - not sure
where they come from - shoes rubbing funny, who knows - she has been
going to a wound center for it -

--- In sclerodermafriendsandfamily@yahoogroups.com, "diane"
<dmcg1012@...> wrote:
>
> has been kind of quiet around here - how is everyone?  how were the
> holidays -
>
> just wanted to see how things were going -
>
> d
>
Hey diane things are going good.  Mama goes to the dr. thurs. she has
been having trouble taking a deep breath. when she does it hurts in her
chest she said. they did a mri and said that there was something there.
It could be some scaring from scleroderma she does have some of that in
there. but this just came on all at once. she woke up and it hurt her
to take a deep breath.  she see her lung dr. on thurs. he will read the
mri and tell us something then.  they put her on strong anti. med. said
it could be a touch of pneu. we will just have to see. just say a
prayer that everything will work out for her. Love Mitzi

Hi Diane,
   Things are good here. The Holidays were great and hope they were the same for
everyone. Yes I noticed this board is kinda quiet.

   Candy

diane <dmcg1012@...> wrote:
           has been kind of quiet around here - how is everyone? how were the
holidays -

just wanted to see how things were going -

d






---------------------------------
Looking for last minute shopping deals?  Find them fast with Yahoo! Search.

[Non-text portions of this message have been removed]

has been kind of quiet around here - how is everyone?  how were the
holidays -

just wanted to see how things were going -

d

Hi Diane thanks for asking about mama.? She had her test done today and the dr.
said that her pressure wasnt as bad as he thought.? tomorrow we go to see lung
dr. and that will read the test to, so I hope they say the same thing.? Thanks
for all your prayers and thinking of us. Mitzi


-----Original Message-----
From: diane <dmcg1012@...>
To: sclerodermafriendsandfamily@yahoogroups.com
Sent: Mon, 10 Dec 2007 4:11 pm
Subject: Re: [Scleroderma Friends and Family ] mama






hi mitzi -

how did things go with you mom today?

diane





________________________________________________________________________
More new features than ever.  Check out the new AOL Mail ! -
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0050000000003


[Non-text portions of this message have been removed]

hi mitzi -

how did things go with you mom today?

diane

--- In sclerodermafriendsandfamily@yahoogroups.com, Candy Richards
<candy_rkr@...> wrote:
>
> Mitzi
>   Hi. i am so sorry to hear about your Mom. My sister died of SD 10
years ago. She had the pulmonary hypertension, I really don't
remember to much she had so much wrong. I do remember she had a hard
time breathing and was on oxygen. A week after she died my brother in
law got the papers where they had excepted her for a lung transplant.
What sticks in my mind is how she lay in a coma in the hospital in
ICU for a week before she died. The Dr. told us the lung transplant
wouldn't have done her any good anyway. It is sad that this disease
effects so many people yet nobody knows about it unless it effects
them in someway. I remember the day they diagniosed her I cried like
a baby i knew what she was up against as I was a CNA and was in a
nursing home with a patient who had had it since she was16. I get the
different types mixed up my sister had the one that not only effected
her skin and joints but her organs too. My sisters best friend ask me
about it after she was diagnoised
>  and I remember telling her if my sister lasted 5 years it would be
a miracle. She lasted 4 my sister was 47 years old when she died. If
you do a search for SD on line ti can probably answer alot of your
question. Again I am sorry. I will keep your Mom in my prayers. may
God be wit you
>
>   Candy
>
> fanchermitzi <fanchermitzi@...> wrote:
>           I just wanted to see if some of yall have pulmonary
hypertention.
> My mama goes monday to have a arteriergram done. That is to see how
> much pressure she has in lungs I think. I am just worried about
her.
> She has had crest scleroderma for 26 years and has always been real
> upbeat nomatter what came her way. I just noticed she has had a
cough
> and is now coughing stuff up. not much just a little. So I was
trying
> to see if some of yall might could give me some advice on it.
Thanks
> Mitzi........ from alabama ...... lol...
>
>
>
>
>
>
> ---------------------------------
> Be a better friend, newshound, and know-it-all with Yahoo! Mobile.
Try it now.
>
> [Non-text portions of this message have been removed]
>
       Thanks Candy for all your information.  I will let you know how
mama comes out with her test today. Mitzi

--- In sclerodermafriendsandfamily@yahoogroups.com, "Travis Stephens"
<wtstephens@...> wrote:
>
> Yes, my mother had developed chronic lung disease. She did not notice
it
> until around winter time. Make sure she is not out of in the cold for
too
> long at a time and stay completely away for smoke. Also, make sure she
> doesn't have to do too much work or even exhaust herself too much
because I
> am sure you noticed that any damage done can be permanent.
>
>
> [Non-text portions of this message have been removed]
>

              Thanks for the information, I will let you know how she
does on her test today.  Mitzi