I just wanted to see if some of yall have pulmonary hypertention.

My mama goes monday to have a arteriergram done. That is to see how

much pressure she has in lungs I think.  I am just worried about her.

She has had crest scleroderma for 26 years and has always been real

upbeat nomatter what came her way.  I just noticed she has had a cough

and is now coughing stuff up. not much just a little. So I was trying

to see if some of yall might could give me some advice on it. Thanks

Mitzi........ from alabama ...... lol...

Mitzi

   Hi. i am so sorry to hear about your Mom. My sister died of SD 10 years ago.

She had the pulmonary hypertension, I really don't remember to much she had so

much wrong. I do remember she had a hard time breathing and was on oxygen. A

week after she died my brother in law got the papers where they had excepted her

for a lung transplant. What sticks in my mind is how she lay in a coma in the

hospital in ICU for a week before she died. The Dr. told us the lung transplant

wouldn't have done her any good anyway. It is sad that this disease effects so

many people yet nobody knows about it unless it effects them in someway. I

remember the day they diagniosed her I cried like a baby i knew what she was up

against as I was a CNA and was in a nursing home with a patient who had had it

since she was16. I get the different types mixed up my sister had the one that

not only effected her skin and joints but her organs too. My sisters best friend

ask me about it after she was diagnoised

  and I remember telling her if my sister lasted 5 years it would be a miracle.

She lasted 4 my sister was 47 years old when she died. If  you do a search for

SD on line ti can probably answer alot of your question. Again I am sorry. I

will keep your Mom in my prayers. may God be with you



   Candy



fanchermitzi <fanchermitzi@...> wrote:

           I just wanted to see if some of yall have pulmonary hypertention.

My mama goes monday to have a arteriergram done. That is to see how

much pressure she has in lungs I think. I am just worried about her.

She has had crest scleroderma for 26 years and has always been real

upbeat nomatter what came her way. I just noticed she has had a cough

and is now coughing stuff up. not much just a little. So I was trying

to see if some of yall might could give me some advice on it. Thanks

Mitzi........ from alabama ...... lol...













---------------------------------

Be a better friend, newshound, and know-it-all with Yahoo! Mobile.  Try it now.



[Non-text portions of this message have been removed]

Mitzi

   Hi. i am so sorry to hear about your Mom. My sister died of SD 10 years ago.

She had the pulmonary hypertension, I really don't remember to much she had so

much wrong. I do remember she had a hard time breathing and was on oxygen. A

week after she died my brother in law got the papers where they had excepted her

for a lung transplant. What sticks in my mind is how she lay in a coma in the

hospital in ICU for a week before she died. The Dr. told us the lung transplant

wouldn't have done her any good anyway. It is sad that this disease effects so

many people yet nobody knows about it unless it effects them in someway. I

remember the day they diagniosed her I cried like a baby i knew what she was up

against as I was a CNA and was in a nursing home with a patient who had had it

since she was16. I get the different types mixed up my sister had the one that

not only effected her skin and joints but her organs too. My sisters best friend

ask me about it after she was diagnoised

  and I remember telling her if my sister lasted 5 years it would be a miracle.

She lasted 4 my sister was 47 years old when she died. If  you do a search for

SD on line ti can probably answer alot of your question. Again I am sorry. I

will keep your Mom in my prayers. may God be wit you



   Candy



fanchermitzi <fanchermitzi@...> wrote:

           I just wanted to see if some of yall have pulmonary hypertention.

My mama goes monday to have a arteriergram done. That is to see how

much pressure she has in lungs I think. I am just worried about her.

She has had crest scleroderma for 26 years and has always been real

upbeat nomatter what came her way. I just noticed she has had a cough

and is now coughing stuff up. not much just a little. So I was trying

to see if some of yall might could give me some advice on it. Thanks

Mitzi........ from alabama ...... lol...













---------------------------------

Be a better friend, newshound, and know-it-all with Yahoo! Mobile.  Try it now.



[Non-text portions of this message have been removed]

--- In sclerodermafriendsandfamily@yahoogroups.com, Candy Richards

<candy_rkr@...> wrote:

>

> Mitzi

>   Hi. i am so sorry to hear about your Mom. My sister died of SD 10

years ago. She had the pulmonary hypertension, I really don't

remember to much she had so much wrong. I do remember she had a hard

time breathing and was on oxygen. A week after she died my brother in

law got the papers where they had excepted her for a lung transplant.

What sticks in my mind is how she lay in a coma in the hospital in

ICU for a week before she died. The Dr. told us the lung transplant

wouldn't have done her any good anyway. It is sad that this disease

effects so many people yet nobody knows about it unless it effects

them in someway. I remember the day they diagniosed her I cried like

a baby i knew what she was up against as I was a CNA and was in a

nursing home with a patient who had had it since she was16. I get the

different types mixed up my sister had the one that not only effected

her skin and joints but her organs too. My sisters best friend ask me

about it after she was diagnoised

>  and I remember telling her if my sister lasted 5 years it would be

a miracle. She lasted 4 my sister was 47 years old when she died. If

you do a search for SD on line ti can probably answer alot of your

question. Again I am sorry. I will keep your Mom in my prayers. may

God be wit you

>

>   Candy

>

> fanchermitzi <fanchermitzi@...> wrote:

>           I just wanted to see if some of yall have pulmonary

hypertention.

> My mama goes monday to have a arteriergram done. That is to see how

> much pressure she has in lungs I think. I am just worried about

her.

> She has had crest scleroderma for 26 years and has always been real

> upbeat nomatter what came her way. I just noticed she has had a

cough

> and is now coughing stuff up. not much just a little. So I was

trying

> to see if some of yall might could give me some advice on it.

Thanks

> Mitzi........ from alabama ...... lol...

>

>

>

>

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Yahoo! Mobile.

Try it now.

>

> [Non-text portions of this message have been removed]

>

       Thanks Candy for all your information.  I will let you know how

mama comes out with her test today. Mitzi

hi mitzi -



how did things go with you mom today?



diane

Hi Diane thanks for asking about mama.? She had her test done today and the dr.

said that her pressure wasnt as bad as he thought.? tomorrow we go to see lung

dr. and that will read the test to, so I hope they say the same thing.? Thanks

for all your prayers and thinking of us. Mitzi





-----Original Message-----

From: diane <dmcg1012@...>

To: sclerodermafriendsandfamily@yahoogroups.com

Sent: Mon, 10 Dec 2007 4:11 pm

Subject: Re: [Scleroderma Friends and Family ] mama













hi mitzi -



how did things go with you mom today?



diane











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[Non-text portions of this message have been removed]

Yes, my mother had developed chronic lung disease. She did not notice it

until around winter time. Make sure she is not out of in the cold for too

long at a time and stay completely away for smoke. Also, make sure she

doesn't have to do too much work or even exhaust herself too much because I

am sure you noticed that any damage done can be permanent.





[Non-text portions of this message have been removed]

--- In sclerodermafriendsandfamily@yahoogroups.com, "Travis Stephens"

<wtstephens@...> wrote:

>

> Yes, my mother had developed chronic lung disease. She did not notice

it

> until around winter time. Make sure she is not out of in the cold for

too

> long at a time and stay completely away for smoke. Also, make sure she

> doesn't have to do too much work or even exhaust herself too much

because I

> am sure you noticed that any damage done can be permanent.

>

>

> [Non-text portions of this message have been removed]

>



              Thanks for the information, I will let you know how she

does on her test today.  Mitzi

Hello everybody it has been a while since I posted anything about

mama.  She has had a rough go of it, but she is doing ok now..  she had

six rounds of chemo. and the dr. did another pet scan and the cancer in

her rib is gone. he said that the other spots that she has have shrunk

greatly .  when he told her that he said I dont quite know what to

say.  and mama told him to say praise the Lord. and that is what we all

did thank yall so much for all of your prayers still continue to pray

for her.  Prayer and the Lord is what will get her and us through this.

He said that she has 1/3 of the cancer left and will start chemo up

again after christmas.  so I say thanks again for all of your

prayers.Love MIt.........

Praise God he knows our needs.I hope your Mom continues to do well.

 

Candy



Live each day as it was your last one.



--- On Mon, 11/10/08, fanchermitzi <fanchermitzi@...> wrote:



From: fanchermitzi <fanchermitzi@...>

Subject: [Scleroderma Friends and Family ] mama

To: sclerodermafriendsandfamily@yahoogroups.com

Date: Monday, November 10, 2008, 8:29 PM













Hello everybody it has been a while since I posted anything about

mama. She has had a rough go of it, but she is doing ok now.. she had

six rounds of chemo. and the dr. did another pet scan and the cancer in

her rib is gone. he said that the other spots that she has have shrunk

greatly . when he told her that he said I dont quite know what to

say. and mama told him to say praise the Lord. and that is what we all

did thank yall so much for all of your prayers still continue to pray

for her. Prayer and the Lord is what will get her and us through this.

He said that she has 1/3 of the cancer left and will start chemo up

again after christmas. so I say thanks again for all of your

prayers.Love MIt.........





































[Non-text portions of this message have been removed]

that's awesome news!



i'm actually taking my mom to the oncologist today too - but we already

know that the cancer is gone - 5 years!  so we are hoping the doc cuts

her free and takes her off the meds.



i'm so happy for you and your family - it's such a relief.  SD is one

thing to have to worry about - but add anything else to it - sigh.



--d