My mother was diagnoised with Scleroderma in the early 1970's. Have been dealing with it for years and it has just gotten to the point that I am at a total...
Molly Having just read your posting, I am so sorry to hear what you are going through. My mum was diagnosed with S/D about 5 years ago and I do know what you...
... Have ... Dear Molly,You can talk to me .I have had Systemic Scleroderma with the C.R.E.S.T. syndrome,Raynaul'd Phenominum all for 10 years,and last...
I first posted to this group on 24 August, telling of my friend who was struggling through a very difficult painful time with scleroderma. On 23 September my...
... of ... Thank you for your sad but wonderful letter.I have both Systemic Scleroderma and Seconday Pulmonary Hypertension plus I suffer from Basilor...
Dear Margie I am so sorry for the loss of your dear friend. I lost my sister to SD 6 years ago, I understand completely what you are going through it hurts as...
My Grandpa has scleroderma. He recently had to have a drainage tube put in and he bled badly afterwards. This is bad because he is O negative. Now he has to ...
Dear Ginny You and your Grandpa are in my thought and prayers. Be strong God will help you through ... ===== __________________________________________________...
Dear Ginny, Here is hoping you got good news from Grnadpa's surgery. My prayers are with you and your family always. Keep the faith and be strong. If I can be...
... scleraderme. ... Thanks Hi! here is the number which you can call toll-free that they will send you the info needed.It is 1-800-722-HOPE.Whatever you need ...
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the sclerodermafriendsandfamily group. File...
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hi everyone... just wanted you to know that this file has been deleted!!!! there is no advertising, or junk mail! hope everyone is doing well...hasn't been...
I'm curious...Have any of you ever had a problem with a nagging salty taste in your mouth. I've been like this a time or two and can't seem to get enough to...
Hello I don't know if I can be of much help but I will try. I am so sorry it has taken me so long to get back to you. I have been having to run back and...
Debbie, I don't have this disease but my mother has had it for over 23 yrs now. As far as her having that problem yes she does and she drinks water all the...
Thank you for replying. I have contacted the foundation and got a whole elvelope full of information. We have sent for some of the books also. Molly King...
I don't think I have a salty taste in my mouth. I have some kind of taste that I can't describe. Brushing my teeth, how many times seems to be the only way...
Yesterday I found out that one of my clients/friends has been diagnosed with scleroderma. Her name is Dana and I am her hairdresser. But we have become very...
hi, I'm new to this group and my Pastor's wife who is a dear friend has taken ill due to scleroderma, she has been unresponsive for almost 40 days now. I'm...
want to take this opportunity to welcome all of the recent newcomers! Hope you find some help and comfort from our group. just wanted to send out a note and...
HELLO!! Im new here...Im a female Systemic Scleroderma patient with Raynaud's phenomenon and polymyositis . I was diagnosed when I was 21 yrs old....Im now 40...
Please share this information! The Scleroderma Foundation is organizing nationwide walkathon events called "Stepping Out to Cure Scleroderma" in the US...
Hi Annette, I too, have Systemic Scleroderma along with Raynaud's, and then the minor list goes on. I am 49 and was diagnosed three years ago. Although, the...
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