Hi Everyone It's good to be back on line. Just wanted everyone to know that in the last month here in KY there has actually been 2 benefit fund raisers for SD....
That certainly is good news,I only hope that more and more people around the world learn more and more about this horrible disease,so we can start to do more...
Join Us for Online Chats! TODAY, Wednesday, August 21, at 9:30 P ET join SF Interim President/CEO Donna Kohli, who will discuss current SF activities and ...
I'm very pleased to have found this website, as I have a dear friend who suffers from scleroderma. We live in different states (of Australia). In good times...
Hi, My name is Julie, and my mum was diagnosed with CREST a couple of years ago, but recently got the diagnosis specified to Systemic Sclerosis (scleroderma)....
got this message in an e-mail...can anyone help? I have had scleroderma for many years. This year, I have had a lot of dental problems and therefor a lot of...
My name is Dusty, I lived with a suffer of scleroderma for almost 11 years. Her name is Kimera J. Goodman and she left us all January 20th 2002. I have come...
... wrote: > My name is Dusty, I lived with a suffer of > scleroderma for almost 11 > years. Her name is Kimera J. Goodman and she left us > all...
Hi. My Grandpa has scleroderma. I don't totally understand this disease. What does it do? I know he is bad off. They don't think he has very long. I am...
... as ve ry long. I am so scared. Don't worry sure there will be a very long road ahead with uhill climbs and not many downhills but with the prayers of your...
Hi! Its me,Yvonne Johannes,(crit).Just wanted to let everyone know in this community that my email addy is now as follows:critterkeeper2001@... Hope...
My mother was diagnoised with Scleroderma in the early 1970's. Have been dealing with it for years and it has just gotten to the point that I am at a total...
Molly Having just read your posting, I am so sorry to hear what you are going through. My mum was diagnosed with S/D about 5 years ago and I do know what you...
... Have ... Dear Molly,You can talk to me .I have had Systemic Scleroderma with the C.R.E.S.T. syndrome,Raynaul'd Phenominum all for 10 years,and last...
I first posted to this group on 24 August, telling of my friend who was struggling through a very difficult painful time with scleroderma. On 23 September my...
... of ... Thank you for your sad but wonderful letter.I have both Systemic Scleroderma and Seconday Pulmonary Hypertension plus I suffer from Basilor...
Dear Margie I am so sorry for the loss of your dear friend. I lost my sister to SD 6 years ago, I understand completely what you are going through it hurts as...
My Grandpa has scleroderma. He recently had to have a drainage tube put in and he bled badly afterwards. This is bad because he is O negative. Now he has to ...
Dear Ginny You and your Grandpa are in my thought and prayers. Be strong God will help you through ... ===== __________________________________________________...
Dear Ginny, Here is hoping you got good news from Grnadpa's surgery. My prayers are with you and your family always. Keep the faith and be strong. If I can be...
... scleraderme. ... Thanks Hi! here is the number which you can call toll-free that they will send you the info needed.It is 1-800-722-HOPE.Whatever you need ...
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the sclerodermafriendsandfamily group. File...
sclerodermafriendsand...
sclerodermafriendsand...
Nov 22, 2002 1:58 am
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hi everyone... just wanted you to know that this file has been deleted!!!! there is no advertising, or junk mail! hope everyone is doing well...hasn't been...
I'm curious...Have any of you ever had a problem with a nagging salty taste in your mouth. I've been like this a time or two and can't seem to get enough to...
Hello I don't know if I can be of much help but I will try. I am so sorry it has taken me so long to get back to you. I have been having to run back and...
Debbie, I don't have this disease but my mother has had it for over 23 yrs now. As far as her having that problem yes she does and she drinks water all the...
Thank you for replying. I have contacted the foundation and got a whole elvelope full of information. We have sent for some of the books also. Molly King...
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