Hi Michelle.. I'm also basically a newbie. I've been "lurking" for a long time, and I *think* I might have posted once. I live in the USA, with my husband,...
Hi anyone, My name is Maria and the lady from Australia, well there could be worse than crest.I have had it with raynauds since 1992. I have gone through alot...
... worse than crest.I have had it with raynauds since 1992. I have gone through alot and sometimes feel why do I want to go on. I have 6 kids and 6...
Hello Maria, You are absolutly right,things can be worse.I am so sorry you are having such a horrible time.Please know we are all here for you,and will help...
... worse than crest.I have had it with raynauds since 1992. I have gone through alot and sometimes feel why do I want to go on. I have 6 kids and 6...
hi everyone... just wanted to share this message i got...if anyof you have websites or pages, you can get a SD awareness banner from here to post.... also the...
my mom (SDer) has pink eye!!! drops seem to be helping...but, you know how it is with SD..you never know...the normal things can stay with you forever.... ...
Hello everyone, Well i have finally had the appointment with the Rheumatoligist, I dont know what i expected,and he did seem to ask lots of question and he did...
... i ... but ... crest. ... Hi Michelle My Rheumatologist was the same way. He even went as far as to tell me NOT to read literature or go onto the Internet...
Getting info from the internet has helped me enormously. I saw my GP today because of severe itching & bruising on my legs. He only had a vague idea about SD &...
HI! My GP is awesome. I take information and experiences into the office with me, and we work together. I'm one of two SD patients that he's had. I think he's...
Hello Debby, I was wondering what did your DR give you for this, I dont always itch but i bruise terribly,I have a bruise on my shin that i dont know how i...
Hi Michelle: It was just my GP I went to see about the itching & the bruising, so he only knows a bit about SD. He isn't sure what the itching is, he says he...
Hi Everyone It's good to be back on line. Just wanted everyone to know that in the last month here in KY there has actually been 2 benefit fund raisers for SD....
That certainly is good news,I only hope that more and more people around the world learn more and more about this horrible disease,so we can start to do more...
Join Us for Online Chats! TODAY, Wednesday, August 21, at 9:30 P ET join SF Interim President/CEO Donna Kohli, who will discuss current SF activities and ...
I'm very pleased to have found this website, as I have a dear friend who suffers from scleroderma. We live in different states (of Australia). In good times...
Hi, My name is Julie, and my mum was diagnosed with CREST a couple of years ago, but recently got the diagnosis specified to Systemic Sclerosis (scleroderma)....
got this message in an e-mail...can anyone help? I have had scleroderma for many years. This year, I have had a lot of dental problems and therefor a lot of...
My name is Dusty, I lived with a suffer of scleroderma for almost 11 years. Her name is Kimera J. Goodman and she left us all January 20th 2002. I have come...
... wrote: > My name is Dusty, I lived with a suffer of > scleroderma for almost 11 > years. Her name is Kimera J. Goodman and she left us > all...
Hi. My Grandpa has scleroderma. I don't totally understand this disease. What does it do? I know he is bad off. They don't think he has very long. I am...
... as ve ry long. I am so scared. Don't worry sure there will be a very long road ahead with uhill climbs and not many downhills but with the prayers of your...
Hi! Its me,Yvonne Johannes,(crit).Just wanted to let everyone know in this community that my email addy is now as follows:critterkeeper2001@... Hope...
My mother was diagnoised with Scleroderma in the early 1970's. Have been dealing with it for years and it has just gotten to the point that I am at a total...
Molly Having just read your posting, I am so sorry to hear what you are going through. My mum was diagnosed with S/D about 5 years ago and I do know what you...
... Have ... Dear Molly,You can talk to me .I have had Systemic Scleroderma with the C.R.E.S.T. syndrome,Raynaul'd Phenominum all for 10 years,and last...
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