Now back from London Royal Free where my daughter was in for two weeks having iloprost and octagam infusions, the good news is they are holding back the ATG as...
My best friend has been in and out of the hospital 3 times in 3 weeks and was finally diagnosed. Almost a year ago she was "diagnosed" with rhemetoid ...
Karin<br><br>I am sorry to hear about your friend, My Mum is a sufferer of SD which was diagnosed about 3 years after many hospital visits where the doctors...
Thanks you for responding Mike. I myself belong to a yahoo group similar in its set to this one for a medical condition of my own, and I have found it to be a...
Hi Everybody!!<br>I just wanted to write a note to re-introduce myself, seems like ever since I joined yahoo a few months ago my life has just gone wacko....
Hi, this sounds so much like me. I was dx almost five years ago with MCTD and still try to live my life as normal that I'm not sick. I have been so scared ...
sorry i've been mia lately...life has been kinda nuts on this end...glad to see so many of you posting...welcome to the newcomers!<br><br>well, on halloween,...
My wife was diagnosed with scleroderma this summer, after having a bout with heart palpitations, and a cardiac echo showing pulm hypertension. I think she...
My Mother suffers from SD, its the systematic type, I would say its her way of dealing with this disease and the most comfortable way of communicating with...
Hi this sounds so much like me. I have been dx. for five years now and still have a hard time when I'm with other scleroderma patients. She has to remember...
You mentioned in an earlier message that you had MCTD. How did your doctors come to that conclusion? We are wondering if my wife may have this rather than ...
Miller, I'm in Hilliard. Maybe your wife would like to talk to me? I don't have severe facial disease and I understand her problem. The first meeting I walked...
Actually I have been to four Drs. now and that is what they all came up with. I had a hard time believing I was sick. I was only 25 how could I be so sick was...
My name is Sharon. I have Scleroderma. I have the same fears. I have not been to a support meeting yet because of the same fear. I am so emotional about my ...
Hi Sharon,<br><br>I am not a scleroderma sufferer, but my hobby is medicine. There is some new research that seems<br>to be slow to spread about the treatment...
I wish your friend all the luck in the world. I have been suffering along with my wife for five years now. I think we hit the low point last year. She tried ...
Hi everyone<br>I am new to this but I have just recently lost my husband of 31 years. He passed away on Nov 8/01.<br>He had sclerodurma and Lupus. He had ...
That's not true. I'm in Columbus and I'm on minocycline. It's not that docs don't support it, they are not allowing others (near Columbus) to claim it as a...
I havent writtne in a while but i have been reading all the posts. My friend was just released form the hospital yesterday. The SD has attcked her kidneys. She...
Best wishes to all for a great new year. I hope everyone is doing well. Ihaven't posted in a while, but thought I would stop by to say hi and wish you all the ...
Hi all.<br><br>My mum is a sufferer of this aweful disease, I was wondering, does anyone know whether smoking although the normal adverse affects, does it...
Obviously it depends on the medication - ask your pharmacist. If your mum has Raynauds's, smoking is certainly contributing to that, as nicotine causes blood...
COLUMBUS, Ohio - People who get icy-cold fingers and toes may have more than just an aversion to winter weather. <br><br>Researchers have determined the cause...
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